Systematic review: unmet supportive care needs in people diagnosed with chronic liver disease

Valery, Patricia C., Powell, Elizabeth, Moses, Neta, Volk, Michael L., McPhail, Steven M., Clark, Paul J. and Martin, Jennifer (2015) Systematic review: unmet supportive care needs in people diagnosed with chronic liver disease. BMJ Open, 5 4: 1-16. doi:10.1136/bmjopen-2014-007451


Author Valery, Patricia C.
Powell, Elizabeth
Moses, Neta
Volk, Michael L.
McPhail, Steven M.
Clark, Paul J.
Martin, Jennifer
Title Systematic review: unmet supportive care needs in people diagnosed with chronic liver disease
Journal name BMJ Open   Check publisher's open access policy
ISSN 2044-6055
Publication date 2015-04-08
Sub-type Critical review of research, literature review, critical commentary
DOI 10.1136/bmjopen-2014-007451
Open Access Status DOI
Volume 5
Issue 4
Start page 1
End page 16
Total pages 16
Place of publication London, United Kingdom
Publisher B M J Group
Collection year 2016
Language eng
Formatted abstract
Objective: People with chronic liver disease, particularly those with decompensated cirrhosis, experience several potentially debilitating complications that can have a significant impact on activities of daily living and quality of life. These impairments combined with the associated complex treatment mean that they are faced with specific and high levels of supportive care needs. We aimed to review reported perspectives, experiences and concerns of people with chronic liver disease worldwide. This information is necessary to guide development of policies around supportive needs screening tools and to enable prioritisation of support services for these patients.

Design: Systematic searches of PubMed, MEDLINE, CINAHL and PsycINFO from the earliest records until 19 September 2014. Data were extracted using standardised forms. A qualitative, descriptive approach was utilised to analyse and synthesise data.

Results: The initial search yielded 2598 reports: 26 studies reporting supportive care needs among patients with chronic liver disease were included, but few of them were patient-reported needs, none used a validated liver disease-specific supportive care need assessment instrument, and only three included patients with cirrhosis. Five key domains of supportive care needs were identified: informational or educational (eg, educational material, educational sessions), practical (eg, daily living), physical (eg, controlling pruritus and fatigue), patient care and support (eg, support groups), and psychological (eg, anxiety, sadness).

Conclusions: While several key domains of supportive care needs were identified, most studies included hepatitis patients. There is a paucity of literature describing the supportive care needs of the chronic liver disease population likely to have the most needs—namely those with cirrhosis. Assessing the supportive care needs of people with chronic liver disease have potential utility in clinical practice for facilitating timely referrals to support services.
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Critical review of research, literature review, critical commentary
Collections: Official 2016 Collection
School of Medicine Publications
UQ Diamantina Institute Publications
 
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