On resilience and acceptance in the transition to palliative care at the end of life

MacArtney, John I., Broom, Alex, Kirby, Emma, Good, Phillip, Wootton, Julia, Yates, Patsy M. and Adams, Jon (2015) On resilience and acceptance in the transition to palliative care at the end of life. Health, 19 3: 263-279. doi:10.1177/1363459314545696

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Author MacArtney, John I.
Broom, Alex
Kirby, Emma
Good, Phillip
Wootton, Julia
Yates, Patsy M.
Adams, Jon
Title On resilience and acceptance in the transition to palliative care at the end of life
Journal name Health   Check publisher's open access policy
ISSN 1363-4593
1461-7196
Publication date 2015-05
Year available 2014
Sub-type Article (original research)
DOI 10.1177/1363459314545696
Volume 19
Issue 3
Start page 263
End page 279
Total pages 17
Place of publication London, United Kingdom
Publisher Sage Publications
Collection year 2016
Language eng
Formatted abstract
Specialist palliative care is a prominent and expanding site of health service delivery, providing highly specialised care to people at the end of life. Its focus on the delivery of specialised life-enhancing care stands in contrast to biomedicine’s general tendency towards life-prolonging intervention. This philosophical departure from curative or life-prolonging care means that transitioning patients can be problematic, with recent work suggesting a wide range of potential emotional, communication and relational difficulties for patients, families and health professionals. Yet, we know little about terminally ill patients’ lived experiences of this complex transition. Here, through interviews with 40 inpatients in the last few weeks of life, we explore their embodied and relational experiences of the transition to inpatient care, including their accounts of an ethic of resilience in pre-palliative care and an ethic of acceptance as they move towards specialist palliative care. Exploring the relationship between resilience and acceptance reveals the opportunities, as well as the limitations, embedded in the normative constructs that inflect individual experience of this transition. This highlights a contradictory dynamic whereby participants’ experiences were characterised by talk of initiating change, while also acquiescing to the terminal progression of their illness.
Keyword Cancer and palliative care
Death dying and bereavement
Experiencing illness and narratives
Narrative analysis
Quality of life
Cancer patients
Experiences
Death
Exploration
Hospice
Needs
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Published online ahead of print 12 August 2014

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2016 Collection
School of Medicine Publications
School of Social Science Publications
 
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