Lost in disability: dis-abled by love

Porter, Marie (2015). Lost in disability: dis-abled by love. In Lisa Raith, Jenny Jones and Marie Porter (Ed.), Mothers at the Margins: Stories of Challenge, Resistance and Love (pp. 123-139) Newcastle upon Tyne, UK: Cambridge Scholars Publishing.

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Name Description MIMEType Size Downloads
Author Porter, Marie
Title of chapter Lost in disability: dis-abled by love
Title of book Mothers at the Margins: Stories of Challenge, Resistance and Love
Place of Publication Newcastle upon Tyne, UK
Publisher Cambridge Scholars Publishing
Publication Year 2015
Sub-type Research book chapter (original research)
ISBN 9781443872355
Editor Lisa Raith
Jenny Jones
Marie Porter
Chapter number 9
Start page 123
End page 139
Total pages 17
Total chapters 19
Collection year 2016
Language eng
Formatted Abstract/Summary
...In this chapter, I focus on my personal experiences as a mother whose life was centred on my disabled son for several decades. I recount how my motherwork situation, and the expectations associated with it, affected me so deeply it caused me to lose all sense of myself as a woman, a mother of able-bodied children, wife, daughter, sister and friend-I became invisible, silenced and alienated :from myself. I then relate this period in my life to my present situation which has greatly increased my sense of vulnerability, by reigniting a fear within me of the expectations others may hold for me and the resultant confusion on how I am best to navigate my way through these current challenges. Through my experiences, I contend that women carry the caring load to their detriment: That society does not acknowledge or value the caring work women engage in and that women are disadvantaged through this caring work, particularly financially (Leiter et al. 2004, 397). Throughout this paper, I will show that the ways in which I was positioned through social expectations have caused unwarranted suffering and damaged my identity. In writing of my experiences I present to you not just my story but a counter-story-a story which refuses, repudiates and contests the master narratives of motherhood and mothering...
Q-Index Code B1
Q-Index Status Confirmed Code
Institutional Status UQ

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Created: Wed, 15 Apr 2015, 09:40:06 EST by Ms Stormy Wehi on behalf of School of Communication and Arts