A Driving Cessation program for people with Dementia and their Family Members: The development of Program and Pilot Study

Ms Raychelle Kaur Sidhu (2015). A Driving Cessation program for people with Dementia and their Family Members: The development of Program and Pilot Study Professional Doctorate, School of Psychology, The University of Queensland.

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Author Ms Raychelle Kaur Sidhu
Thesis Title A Driving Cessation program for people with Dementia and their Family Members: The development of Program and Pilot Study
School, Centre or Institute School of Psychology
Institution The University of Queensland
Publication date 2015-03-24
Thesis type Professional Doctorate
Supervisor Nancy Pachana
Jacqueline Liddle
Total pages 242
Language eng
Subjects 111705 Environmental and Occupational Health and Safety
1701 Psychology
Abstract/Summary Background: The impact of dementia on safe driving is well recognised and it is accepted that all people with dementia (PWD) will need to cease driving at some stage in the disease. Driving cessation can result in poor outcome for PWD and family members including psychological distress, loss of independence, reduced social involvement and participation out-of-home activities. Currently there is a paucity of driving cessation interventions for drivers with dementia to plan for transport and lifestyle needs post-cessation. Research Aims: The aims of this thesis were to 1) adapt existing driving cessation program for older adults, University of Queensland driver Retirement Initiative (UQDRIVE), to dementia drivers and their family members; 2) to evaluate the usefulness of the program using a health professional reference group and 3) lastly to explore the effectiveness of the program using PWD and their family members in a pilot study. Methodology and Findings: The UQDRIVE-PWD was developed from a synthesis of the literature from the experiences of driver with dementia and their family members, existing driving retirement programs, dementia care literature and relevant theoretical models. The UQDRIVE-PWD was an individualised, early-intervention, educational support group program. It is designed for both PWD and family members. The UQDRIVE-PWD would comprise of four to six weekly, 2-hours sessions. It uses a flexible modular system with content areas covering issues raised by PWD and the families. Following the development of UQDRIVE for PWD, the clinical utility of the program was investigated with a reference group of health professionals working with people with dementia. Content analysis was conducted on the data and this information was used to modify the UQDRIVE for increased acceptability, suitability and relevance to PWD and their family members facing driving related issues. Overall, health professionals reported the program would be useful and relevant for PWD and their family. Minor changes were made to the content of the UQDRIVE-PWD program. The program was piloted to retiring PWD drivers and their family members, using a pre-post design with 2 dyads (PWD and family members) and one consisting of family members only. The findings revealed improvements in well-being outcomes (depression and anxiety), self-efficacy in maintaining transport and lifestyle needs, and performance and satisfaction with identified goals during the intervention. There was an overall satisfaction with the program however areas of satisfaction with the program differed for each family. Conclusion: From the finding we were able to drawn on four key areas that inform driving retirement programs for PWD including, 1) involving both PWD and family, 2) timing of the intervention optimally should be around the time of diagnosis or cessation, 3) interventions needs to cover broad range of strategies and 4) interventions should encourage the development of identities and related roles, activities and accessible community destinations that are not related to driving.
Keyword Driving cessation
Psychosocial adjustment

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Created: Tue, 24 Mar 2015, 10:59:55 EST by Ms Raychelle Kaur Sidhu on behalf of Faculty of Health and Behavioural Sciences