Promoting palliative care in the community: production of the primary palliative care toolkit by the European Association of Palliative Care Taskforce in primary palliative care

Murray, Scott A., Firth, Adam, Schneider, Nils, Van den Eynden, Bart, Gomez-Batiste, Xavier, Brogaard, Trine, Villanueva, Tiago, Abela, Jurgen, Eychmuller, Steffen, Mitchell, Geoffrey, Downing, Julia, Sallnow, Libby, van Rijswijkm, Erik, Barnard, Alan, Lynch, Marie, Fogen, Frederic and Moine, Sebastien (2015) Promoting palliative care in the community: production of the primary palliative care toolkit by the European Association of Palliative Care Taskforce in primary palliative care. Palliative Medicine, 29 2: 101-111. doi:10.1177/0269216314545006


Author Murray, Scott A.
Firth, Adam
Schneider, Nils
Van den Eynden, Bart
Gomez-Batiste, Xavier
Brogaard, Trine
Villanueva, Tiago
Abela, Jurgen
Eychmuller, Steffen
Mitchell, Geoffrey
Downing, Julia
Sallnow, Libby
van Rijswijkm, Erik
Barnard, Alan
Lynch, Marie
Fogen, Frederic
Moine, Sebastien
Title Promoting palliative care in the community: production of the primary palliative care toolkit by the European Association of Palliative Care Taskforce in primary palliative care
Journal name Palliative Medicine   Check publisher's open access policy
ISSN 1477-030X
0269-2163
Publication date 2015-02-05
Year available 2014
Sub-type Article (original research)
DOI 10.1177/0269216314545006
Open Access Status
Volume 29
Issue 2
Start page 101
End page 111
Total pages 11
Place of publication London United Kingdom
Publisher Sage Publications
Collection year 2015
Language eng
Formatted abstract
Background: A multidisciplinary European Association of Palliative Care Taskforce was established to scope the extent of and learn what facilitates and hinders the development of palliative care in the community across Europe.

Aim: To document the barriers and facilitators for palliative care in the community and to produce a resource toolkit that palliative care specialists, primary care health professionals or policymakers, service developers, educationalists and national groups more generally could use to facilitate the development of palliative care in their own country.

Design: (1) A survey instrument was sent to general practitioners with knowledge of palliative care services in the community in a diverse sample of European countries. We also conducted an international systematic review of tools used to identify people for palliative care in the community. (2) A draft toolkit was then constructed suggesting how individual countries might best address these issues, and an online survey was then set up for general practitioners and specialists to make comments. Iterations of the toolkit were then presented at international palliative care and primary care conferences.

Results: Being unable to identify appropriate patients for palliative care in the community was a major barrier internationally. The systematic review identified tools that might be used to help address this. Various facilitators such as national strategies were identified. A primary palliative care toolkit has been produced and refined, together with associated guidance.

Conclusion: Many barriers and facilitators were identified. The primary palliative care toolkit can help community-based palliative care services to be established nationally.
Keyword Palliative care
Primary palliative care
Primary health care
Community health services
Policy
Qualitative research
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Published online ahead of print 13 Nov 2014

Document type: Journal Article
Sub-type: Article (original research)
Collections: Discipline of General Practice Publications
Official 2015 Collection
School of Medicine Publications
 
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