An exploratory study of grief and health-related quality of life for caregivers of people with dementia

Shuter, Patricia, Beattie, Elizabeth and Edwards, Helen (2014) An exploratory study of grief and health-related quality of life for caregivers of people with dementia. American Journal of Alzheimers Disease & Other Dementias, 29 4: 379-385. doi:10.1177/1533317513517034

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Author Shuter, Patricia
Beattie, Elizabeth
Edwards, Helen
Title An exploratory study of grief and health-related quality of life for caregivers of people with dementia
Journal name American Journal of Alzheimers Disease & Other Dementias   Check publisher's open access policy
ISSN 1938-2731
1533-3175
Publication date 2014-05-31
Year available 2012
Sub-type Article (original research)
DOI 10.1177/1533317513517034
Volume 29
Issue 4
Start page 379
End page 385
Total pages 7
Place of publication Thousand Oaks, CA, United States
Publisher Sage Publications
Collection year 2015
Language eng
Abstract The aim of this qualitative study was to explore key positive and negative factors that impact on grief resolution and health outcomes of caregivers who were caring, or had cared, for a family member with dementia who had died. The study was a scoping study and involved face-to-face interviews with these family caregivers (N = 13). Results indicated a complex interaction of issues (many unique to dementia caregiving) which in different combinations acted as protective or risk factors for caregiver outcomes. Interaction of individual characteristics, role appraisal, value of intrinsic and extrinsic resources, and experiences with health professionals during the caregiving period and around the death of their relative were shown to have the most influence on caregiver outcomes. Psychological resilience and satisfaction with caregiving were protective against negative outcomes while unresolved grief was a risk factor. These findings highlight the potential benefits of multicomponent, holistic dementia caregiver interventions.
Keyword Dementia
Family caregivers
Grief
Health outcomes
Protective and risk factors
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Published online before print December 31, 2013

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2015 Collection
School of Nursing, Midwifery and Social Work Publications
 
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Citation counts: TR Web of Science Citation Count  Cited 4 times in Thomson Reuters Web of Science Article | Citations
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Created: Sat, 07 Feb 2015, 00:29:13 EST by Vicki Percival on behalf of School of Nursing, Midwifery and Social Work