Kidney disease health literacy among new patients referred to a nephrology outpatient clinic

Burke, M. T., Kapojos, J., Sammartino, C. and Gray, N. A. (2014) Kidney disease health literacy among new patients referred to a nephrology outpatient clinic. Internal Medicine Journal, 44 11: 1080-1086. doi:10.1111/imj.12519


Author Burke, M. T.
Kapojos, J.
Sammartino, C.
Gray, N. A.
Title Kidney disease health literacy among new patients referred to a nephrology outpatient clinic
Journal name Internal Medicine Journal   Check publisher's open access policy
ISSN 1444-0903
1445-5994
Publication date 2014-11
Year available 2014
Sub-type Article (original research)
DOI 10.1111/imj.12519
Open Access Status
Volume 44
Issue 11
Start page 1080
End page 1086
Total pages 7
Place of publication Richmond, VIC Australia
Publisher Wiley-Blackwell Publishing Asia
Collection year 2015
Language eng
Formatted abstract
Aim
This study aimed to determine patients' understanding of chronic kidney disease (CKD) when first presenting to a nephrology clinic.

Methods
Newly referred patients to a nephrology clinic were surveyed with open-ended questions about their understanding of CKD causes, symptoms and management.

Results
Two hundred and ten patients were surveyed. Median age was 66.5 years (interquartile range 52–77), 50.5% female and mean body mass index 29.7 ± 6.8 kg/m2. Prevalence of risk factors for CKD included 31% diabetic, 62% hypertension, 19% family history of CKD and 2% Aboriginal or Torres Strait Islander. CKD stage prevalence was 0 (8%), 1 (24%), 2 (11%), 3 (38.5%), 4 (18%) and 5 (0.5%). Eighty-two per cent were referred by their primary care physician and 29% had seen a nephrologist previously. Kidney Health Australia was mentioned by 2.4%. Sixteen per cent were unsure why they had been referred. CKD causes identified by patients were unsure (40%), alcohol (29%), hypertension (16%) and diabetes (14%). Symptoms identified included asymptomatic (16%), kidney pain (17%) and other (42%). Management suggested by patients was uncertain (51%), dialysis (32%) and anti-hypertensive medication (16%). Eighty-two per cent reported unsatisfactory education from their primary care physician.

Conclusions
New patients referred to a renal outpatient department had poor knowledge about kidney disease. Education of patients should begin in primary care prior to referral. For most patients, education programmes need to be targeted at a simplistic level.
Keyword Chronic kidney disease
Health literacy
Knowledge
Questionnaire
Survey
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2015 Collection
School of Medicine Publications
 
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