Exploring health care providers’ perceptions of the needs of stroke carers: Informing development of an optimal health program

O'Brien, Casey L., Moore, Gaye, Rolley, John X., Ski, Chantal F., Thompson, David R., Lautenschlager, Nicola T., Gonzales, Graeme, Hsueh, Ya-Seng and Castle, David (2014) Exploring health care providers’ perceptions of the needs of stroke carers: Informing development of an optimal health program. Topics in Stroke Rehabilitation, 21 5: 421-431. doi:10.1310/tsr2105-421

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Author O'Brien, Casey L.
Moore, Gaye
Rolley, John X.
Ski, Chantal F.
Thompson, David R.
Lautenschlager, Nicola T.
Gonzales, Graeme
Hsueh, Ya-Seng
Castle, David
Title Exploring health care providers’ perceptions of the needs of stroke carers: Informing development of an optimal health program
Journal name Topics in Stroke Rehabilitation   Check publisher's open access policy
ISSN 1074-9357
1945-5119
Publication date 2014-10-23
Year available 2014
Sub-type Article (original research)
DOI 10.1310/tsr2105-421
Open Access Status File (Publisher version)
Volume 21
Issue 5
Start page 421
End page 431
Total pages 11
Place of publication Leeds, W Yorks, United Kingdom
Publisher Maney Publishing
Collection year 2015
Language eng
Formatted abstract
Background: Health care provider experiences of the carer have been researched, but little is written about how these can inform development of support programs.

Objectives: This study aimed to (1) explore health care provider perceptions of stroke carer roles and support needs and (2) examine carer needs across the stroke care trajectory to assist with development of an Optimal Health Program (OHP) to support carers. This study is part of a staged program of research that will evaluate and refine the OHP.

Methods: Four dual-moderated semi-structured focus groups of stroke health care providers across acute, subacute, and community rehabilitation services were conducted. Facilitators used a semi-structured focus group schedule to guide discussion. Sessions were recorded, transcribed, and analyzed using thematic and content analysis.

Results: Three key themes emerged: transition, information, and impact of stroke. A number of subthemes highlighted the distinct roles of health care providers and carers. Specific elements of the OHP were identified as having the potential to advance support for carers across the stroke care trajectory.

Discussion: Findings support the integration of an OHP for carers within existing stroke care services in Australian public hospital and community settings.

Conclusion: This study suggests how health care provider experiences could inform a self-management OHP to assist carers in navigating stroke services and to address their health-related concerns.
Keyword Carers
Carer support
Focus groups
Health care providers
Optimal health
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2015 Collection
School of Nursing, Midwifery and Social Work Publications
 
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Created: Tue, 11 Nov 2014, 13:53:14 EST by Vicki Percival on behalf of School of Nursing, Midwifery and Social Work