Functional status and patient-reported outcome 10 years after stroke: the Lund Stroke Register

Jönsson, Ann-Cathrin, Delavaran, Hossein, Iwarsson, Susanne, Ståhl, Agneta, Norrving, Bo and Lindgren, Arne (2014) Functional status and patient-reported outcome 10 years after stroke: the Lund Stroke Register. Stroke, 35 6: 1784-1790. doi:10.1161/STROKEAHA.114.005164

Author Jönsson, Ann-Cathrin
Delavaran, Hossein
Iwarsson, Susanne
Ståhl, Agneta
Norrving, Bo
Lindgren, Arne
Title Functional status and patient-reported outcome 10 years after stroke: the Lund Stroke Register
Journal name Stroke   Check publisher's open access policy
ISSN 0039-2499
Publication date 2014-06
Sub-type Article (original research)
DOI 10.1161/STROKEAHA.114.005164
Open Access Status
Volume 35
Issue 6
Start page 1784
End page 1790
Total pages 7
Editor Markku Kaste
Place of publication Philadelphia, PA, United States
Publisher Lippincott Williams & Wilkins
Collection year 2015
Language eng
Formatted abstract
Background and Purpose—Long-term studies of outcome after stroke are scarce. Our aim was to study functional status and patient-reported outcome 10 years after a first-ever stroke.

Methods—Ten-year follow-up was conducted among the survivors from a population-based group of 416 patients included in the Lund Stroke Register, Sweden, between March 1, 2001, and February 28, 2002. The Barthel index was used to assess the functional status and the modified Rankin Scale to assess the degree of disability. The EQ-5D scale was used for survivors’ self-reports about health outcome and the specific Short-Form 36 (SF-36) question for rating their overall health. The patients also reported their frequency of physical activity.

Results—Among 145 survivors 10 years after stroke (median age, 78 years), 59% were men, 90% lived in their ordinary housing, 73% were assessed as independent, and 71% had no or slight disability. The need of assistance with mobility and self-care was reported by 14% and with usual activities by 22%. Moderate pain was reported by 39%, and 4% had a high degree of pain. Moderate anxiety/depression was reported by 28% and high degree only by 1%. Overall health status was reported in positive terms by more than two thirds of the survivors. Almost half the cohort reported the same frequency of physical activity (≥4× weekly) as before stroke onset.

Conclusions—This study indicates that 10-year stroke survivors in Sweden are mostly independent in daily activities and report good overall health and frequent physical activity, although half of them are ≥78 years.
Keyword Long-term survivors
Patient outcome assessment
Physical activity
Recovery of function
Self report
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status Non-UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Non HERDC
School of Nursing, Midwifery and Social Work Publications
Version Filter Type
Citation counts: TR Web of Science Citation Count  Cited 7 times in Thomson Reuters Web of Science Article | Citations
Scopus Citation Count Cited 8 times in Scopus Article | Citations
Google Scholar Search Google Scholar
Created: Thu, 26 Jun 2014, 09:51:16 EST by Vicki Percival on behalf of School of Nursing, Midwifery and Social Work