Research participation by people with intellectual disability and mental health issues: An examination of the processes of consent

Taua, Chris, Neville, Christine and Hepworth, Julie (2014) Research participation by people with intellectual disability and mental health issues: An examination of the processes of consent. International Journal of Mental Health Nursing, 23 6: 513-524. doi:10.1111/inm.12079


Author Taua, Chris
Neville, Christine
Hepworth, Julie
Title Research participation by people with intellectual disability and mental health issues: An examination of the processes of consent
Journal name International Journal of Mental Health Nursing   Check publisher's open access policy
ISSN 1445-8330
1447-0349
Publication date 2014-12
Year available 2014
Sub-type Article (original research)
DOI 10.1111/inm.12079
Open Access Status
Volume 23
Issue 6
Start page 513
End page 524
Total pages 12
Place of publication Richmond, Australia
Publisher Wiley-Blackwell Publishing Asia
Collection year 2015
Language eng
Formatted abstract
Balancing the demands of research and ethics is always challenging, and even more so when recruiting vulnerable groups. Within the context of current legislation and international human rights declarations, it is strongly advocated that research can and must be undertaken with all recipients of health-care services. Research in the field of intellectual disability presents particular challenges in regards to consenting processes. This paper is a reflective overview and analysis of the complex processes undertaken, and events that occurred in gaining informed consent from people with intellectual disability to participate in a study exploring their experiences of being an inpatient in mental health hospitals within Aotearoa/New Zealand. A framework based on capacity, information, and voluntariness is presented, with excerpts from the field provided to explore consenting processes. The practical implications of the processes utilized are then discussed in order to stimulate debate regarding clearer and enhanced methods of gaining informed consent from people with intellectual disability.
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2015 Collection
School of Nursing, Midwifery and Social Work Publications
 
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Citation counts: TR Web of Science Citation Count  Cited 4 times in Thomson Reuters Web of Science Article | Citations
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Created: Tue, 25 Mar 2014, 20:16:45 EST by Dr Christine Neville on behalf of School of Nursing, Midwifery and Social Work