"For Māori, language is precious. And without it we are a bit lost": Māori experiences of aphasia

McLellan, Karen M., McCann, Clare M., Worrall, Linda E. and Harwood, Matire L. N. (2014) "For Māori, language is precious. And without it we are a bit lost": Māori experiences of aphasia. Aphasiology, 28 4: 453-470. doi:10.1080/02687038.2013.845740


Author McLellan, Karen M.
McCann, Clare M.
Worrall, Linda E.
Harwood, Matire L. N.
Title "For Māori, language is precious. And without it we are a bit lost": Māori experiences of aphasia
Journal name Aphasiology   Check publisher's open access policy
ISSN 0268-7038
1464-5041
Publication date 2014-04
Year available 2013
Sub-type Article (original research)
DOI 10.1080/02687038.2013.845740
Open Access Status
Volume 28
Issue 4
Start page 453
End page 470
Total pages 18
Place of publication Oxon, United Kingdom
Publisher Routledge
Collection year 2014
Language eng
Formatted abstract
Background:
Experiences of aphasia are shaped by culture. Therefore, to provide appropriate services for people with aphasia (PWA), speech-language therapists (SLTs) must understand aphasia from their potential clients' cultural perspective.

Aims:
This study aimed to describe and interpret the experiences of Māori with aphasia and their whānau (extended family), to inform service delivery for this population.

Methods & Procedures:
This study is kaupapa Māori research (KMR), an Indigenous research approach that privileges Māori culture and knowledge. A qualitative methodology, interpretive description (ID), was incorporated to produce clinically relevant findings that will benefit SLTs and Māori.In-depth interviews were undertaken with 11 Māori with aphasia and their nominated whānau members. Participants spoke about aphasia-related changes in relationships, health, spirituality, activities and family and community roles. Analysis was informed by interpretive description (ID) and kaupapa Māori.

Outcomes & Results:
Participants described a range of positive and negative experiences of aphasia. These developed into two pairs of themes: (1) "Grieving for what is lost" and "Recognising what we have got" (2) "It is hard" and "Choosing how to respond".

Conclusions:
Aphasia can have a profound effect on Māori families and bring many changes in family roles and relationships. Despite difficulties, whānau can actively manage their situation, and enable the person with aphasia to participate in the whānau and community. The findings of this study will inform clinical practice and provide the basis for the development of resources for use in speech-language therapy services for Māori with aphasia and their whānau.
Keyword Aphasia
Family
Indigenous
Interpretive description
Māori
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2014 Collection
School of Health and Rehabilitation Sciences Publications
 
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