Parenting a child with a traumatic brain injury: Experiences of parents and health professionals

Brown, Felicity L., Whittingham, Koa, Sofronoff, Kate and Boyd, Roslyn N. (2013) Parenting a child with a traumatic brain injury: Experiences of parents and health professionals. Brain Injury, 27 13-14: 1570-1582. doi:10.3109/02699052.2013.841996


Author Brown, Felicity L.
Whittingham, Koa
Sofronoff, Kate
Boyd, Roslyn N.
Title Parenting a child with a traumatic brain injury: Experiences of parents and health professionals
Journal name Brain Injury   Check publisher's open access policy
ISSN 0269-9052
1362-301X
Publication date 2013
Sub-type Article (original research)
DOI 10.3109/02699052.2013.841996
Volume 27
Issue 13-14
Start page 1570
End page 1582
Total pages 13
Place of publication London, England, U.K.
Publisher Informa Healthcare
Collection year 2014
Language eng
Subject 2728 Clinical Neurology
1201 Architecture
3204 Developmental and Educational Psychology
Abstract Objective: To qualitatively explore the experiences, challenges and needs of parents of children with traumatic brain injury (TBI) in order to inform future intervention research through incorporation of participant knowledge and experience. Methods: Parents of children with TBI (n=10) and experienced health professionals in paediatric rehabilitation (n=5) took part in focus groups or individual interviews. Audio recordings were transcribed verbatim and an inductive thematic analysis performed. Findings: Participants reported that, beyond the impact of the injury on the child, TBI affects the entire family. Parents need to adjust to and manage their child's difficulties and can also experience significant emotional distress, relationship discord and burden of care, further adding to the challenges of the parenting role. Parents can feel isolated and the importance of empowerment, support and information was emphasized. Coping styles of disengagement and avoidance were often reported, despite acknowledgement that these were not beneficial. Conclusions: Parenting interventions may provide essential support for parents in adjusting to and managing their child's difficulties and the efficacy of existing programmes needs evaluation. Addressing parent emotional adjustment and coping strategies is vital following paediatric TBI, given the impact on parent well-being and the potential negative effects on child outcomes through reduced parenting effectiveness. Group programmes may enable connection and support.
Keyword Family
Focus group
Parent
Qualitative research
Traumatic brain injury
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

 
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