Improving access to electronic health records for people with intellectual disability: A qualitative study

Van Dooren, Kate, Lennox, Nick and Stewart, Madeline (2013) Improving access to electronic health records for people with intellectual disability: A qualitative study. Australian Journal of Primary Health, 19 4: 336-342. doi:10.1071/PY13042


Author Van Dooren, Kate
Lennox, Nick
Stewart, Madeline
Title Improving access to electronic health records for people with intellectual disability: A qualitative study
Journal name Australian Journal of Primary Health   Check publisher's open access policy
ISSN 1448-7527
1836-7399
Publication date 2013
Year available 2013
Sub-type Article (original research)
DOI 10.1071/PY13042
Volume 19
Issue 4
Start page 336
End page 342
Total pages 7
Place of publication Collingwood, VIC Australia
Publisher C S I R O Publishing
Collection year 2014
Language eng
Subject 2739 Public Health, Environmental and Occupational Health
2719 Health Policy
Abstract People with intellectual disability represent ∼2-3% of the Australian population and experience elevated rates of mortality and morbidity compared with the general population. People with intellectual disability, and their families and carers, must keep track of extensive medical information while also managing turnover of paid staff, general practitioners and other health professionals, making them beneficiaries of Australia's new eHealth record system. Although they are key users, there is a lack of knowledge about the accessibility of the system for individuals with intellectual disability, or those responsible for managing their health information. This is a missed opportunity to improve the lives of an already overlooked group. This study aimed to identify the facilitators and barriers to registering for an eHealth record network for people with intellectual disability and those supporting them to manage their health information. We interviewed potential users of eHealth records, including four people with intellectual disability, three family members and two residential support workers. Our findings suggest that decision-makers involved in the roll-out of the eHealth record networks should incorporate 'reasonable accommodations' to improve accessibility for people with intellectual disability and those who support them to manage their health information. This includes identifying and eliminating the barriers to accessibility of eHealth records and taking appropriate measures to promote access to individuals with intellectual disability. People with intellectual disability and the people who support them are a diverse group with a range of abilities. The translation of their views into practice will help to improve the eHealth system for this and other vulnerable population groups.
Keyword Australian Population
Morbidity
Mortality statistics
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2014 Collection
School of Medicine Publications
 
Versions
Version Filter Type
Citation counts: TR Web of Science Citation Count  Cited 1 times in Thomson Reuters Web of Science Article | Citations
Scopus Citation Count Cited 1 times in Scopus Article | Citations
Google Scholar Search Google Scholar
Created: Tue, 03 Dec 2013, 00:29:54 EST by System User on behalf of Medicine - Mater Hospital