Detached, distraught or discerning? Fathers of adolescents with chronic illness: a review of the literature

Goldstein, Henry, Akre, Christina, Belanger, Richard E. and Suris, Joan-Carles (2013) Detached, distraught or discerning? Fathers of adolescents with chronic illness: a review of the literature. International Journal of Adolescent Medicine and Health, 25 2: 109-117. doi:10.1515/ijamh-2013-0018

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Author Goldstein, Henry
Akre, Christina
Belanger, Richard E.
Suris, Joan-Carles
Title Detached, distraught or discerning? Fathers of adolescents with chronic illness: a review of the literature
Journal name International Journal of Adolescent Medicine and Health   Check publisher's open access policy
ISSN 0334-0139
2191-0278
Publication date 2013-06-01
Year available 2012
Sub-type Critical review of research, literature review, critical commentary
DOI 10.1515/ijamh-2013-0018
Open Access Status File (Publisher version)
Volume 25
Issue 2
Start page 109
End page 117
Total pages 9
Place of publication Berlin, Germany
Publisher Walter de Gruyter
Collection year 2014
Language eng
Abstract Parenting a child with chronic disease provides a unique set of challenges for both mothers and fathers throughout all phases of the illness. However, fathers of these children are under-represented in existing research. This review focuses on the fathers of children with chronic disease included in 44 original articles. We address the challenges to the father's role as breadwinner, leader and strength-giver in the family. Three time-periods describe the obstacles fathers tackle when parenting children with chronic disease: A) diagnosis and short-term, characterized by distress, isolation and uncertainty; b) the mastery period, characterized by the struggle to establish routine and by support and spiri tuality; and c) the long-term, characterized by relationship and personality change, worries and bereavement. Overall, whilst current research has revealed some key themes pertaining to fathers of children with chronic disease, further studies are required to foster the development of support mechanisms for the specific needs of these fathers.
Keyword Adolescents
Chronic illness
Fathers
Parent - child relations
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Critical review of research, literature review, critical commentary
Collections: Official 2014 Collection
School of Medicine Publications
 
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