'I was worried coming in because I don't really know why it was arranged': the subjective experience of new patients and their primary caregivers attending a memory clinic

Cahill, Suzanne M., Gibb, Matthew, Bruce, Irene, Headon, Mary and Drury, Mary (2008) 'I was worried coming in because I don't really know why it was arranged': the subjective experience of new patients and their primary caregivers attending a memory clinic. Dementia, 7 2: 175-189. doi:10.1177/1471301208091157


Author Cahill, Suzanne M.
Gibb, Matthew
Bruce, Irene
Headon, Mary
Drury, Mary
Title 'I was worried coming in because I don't really know why it was arranged': the subjective experience of new patients and their primary caregivers attending a memory clinic
Journal name Dementia   Check publisher's open access policy
ISSN 1471-3012
1741-2684
Publication date 2008-05
Sub-type Article (original research)
DOI 10.1177/1471301208091157
Open Access Status
Volume 7
Issue 2
Start page 175
End page 189
Total pages 15
Place of publication London, United Kingdom
Publisher Sage Publications
Abstract Whilst in the Western world, memory clinics are fast becoming an evolving feature of the Geriatric Service landscape, little is known from a user's perspective about the expectations and experiences of people with memory problems referred to a memory clinic for the first time and about the attitudes and concerns of their family caregivers. This article reports quantitative and qualitative data emerging from a study of 28 patients with dementia and their family caregivers who attended a first appointment at a National Memory Clinic in Ireland. Data show that despite initially feeling unnerved by the clinic appointment, immediately afterwards the majority of patients felt content with the assessment process, were satisfied with the explanations and information received, felt the appointment had benefited them and by the end of the visit felt more positive than negative about their experience. A large number of patients who responded to a question about feedback, requested that this information be given to them in writing as well as orally. Some recommendations are made about small procedural changes which can be made to help to demystify the memory clinic experience.
Keyword Assessment
Family caregiver
Memory problems
Person with dementia
Service
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collection: School of Nursing, Midwifery and Social Work Publications
 
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