Engaging young people with Autism Spectrum Disorder in research interviews

Harrington, Caitlin, Foster, Michele, Rodger, Sylvia and Ashburner, Jill (2013) Engaging young people with Autism Spectrum Disorder in research interviews. British Journal of Learning Disabilities, 42 2: 153-161. doi:10.1111/bld.12037

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Author Harrington, Caitlin
Foster, Michele
Rodger, Sylvia
Ashburner, Jill
Title Engaging young people with Autism Spectrum Disorder in research interviews
Journal name British Journal of Learning Disabilities   Check publisher's open access policy
ISSN 1354-4187
1468-3156
Publication date 2013-06-15
Sub-type Article (original research)
DOI 10.1111/bld.12037
Volume 42
Issue 2
Start page 153
End page 161
Total pages 9
Place of publication Chichester, West Sussex, United Kingdom
Publisher Wiley-Blackwell Publishing
Collection year 2014
Language eng
Formatted abstract
Accessible summary
• Listening to young people with autism spectrum disorder is important.
• Researchers can help support young people to have their say.
• Each young person is different. The supports used need to match their needs.

This study draws on the first author's doctoral research on the mainstream schooling experiences of young people with autism spectrum disorder (ASD) and their parents in Queensland, Australia. The aims are to share some of the practical strategies that were adapted and developed to engage the young people in the research and to critically reflect on what this means for future inclusive methodological approaches in this area. The key message is that diagnostic-related assumptions about impairments can lead researchers to develop strategies which exclude or restrict rather than maximise participation of disabled people in research. To enable young people with ASD to provide rich and meaningful insights researchers need to acknowledge and plan creatively and flexibly for the interactive dynamic that is unique to each individual as well as for needs which might be shared.
Keyword Asperger Syndrome
Autism
Interviews
Methodology
Qualitative
Young people
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Article first published online: 15 June 2013.

 
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Created: Fri, 25 Oct 2013, 17:09:41 EST by Dr Michele Foster on behalf of School of Social Work and Human Services