The stages of driving cessation for people with dementia: needs and challenges.

Liddle, Jacki, Bennett, Sally, Allen, Shelley, Lie, David C., Standen, Bradene and Pachana, Nancy A. (2013) The stages of driving cessation for people with dementia: needs and challenges.. International Psychogeriatrics, FirstView 1-14. doi:10.1017/S1041610213001464

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Author Liddle, Jacki
Bennett, Sally
Allen, Shelley
Lie, David C.
Standen, Bradene
Pachana, Nancy A.
Title The stages of driving cessation for people with dementia: needs and challenges.
Journal name International Psychogeriatrics   Check publisher's open access policy
ISSN 1041-6102
Publication date 2013-09-02
Year available 2013
Sub-type Article (original research)
DOI 10.1017/S1041610213001464
Volume FirstView
Start page 1
End page 14
Total pages 14
Place of publication Cambridge, United Kingdom
Publisher Cambridge University Press
Collection year 2014
Language eng
Formatted abstract
Background: The impact of dementia on safe driving is well recognized and is generally accepted that all people with dementia are likely to need to cease driving at some stage in the disease process. Both driving and driving cessation can have poor outcomes for people with dementia and their caregivers in terms of health, safety, community access, and well-being. Although approaches to facilitate better outcomes from driving cessation are being developed, the processes of driving cessation for people with dementia are still not fully understood.

Methods: Within a descriptive phenomenological framework, semi-structured interviews were undertaken with key stakeholders, including retired drivers with dementia, family members, and health professionals.

Results: Findings from four retired drivers with dementia, 11 caregivers, and 15 health professionals characterized driving cessation for people with dementia as a process with three stages and associated challenges and needs. The early stage involved worried waiting, balancing safety with impending losses, and the challenge of knowing when to stop. The crisis stage involved risky driving or difficult transportation, acute adjustment to cessation and life without driving, and relationship conflict. The post-cessation stage was described as a long journey with ongoing battles and adjustments as well as decreased life space, and was affected by the disease progression and the exhaustion of caregiver.

Conclusions: The concept of stages of driving cessation for people with dementia could be used to develop new approaches or adapt existing approaches to driving cessation. Interventions would need to be individualized, optimally timed, and address grief, explore realistic alternative community access, and simultaneously maintain key relationships and provide caregiver support.
Keyword Qualitative
Life transition
Community mobility
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Published online: 02 September 2013

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Created: Mon, 30 Sep 2013, 19:06:28 EST by Dr Jacki Liddle on behalf of UQ Centre for Clinical Research