Coordination of the multidisciplinary treatment efforts

Vogels, Annick and Scheermeyer, Elly (2013). Coordination of the multidisciplinary treatment efforts. In Charlotte Höybye (Ed.), Prader-Willi Syndrome (pp. 229-254) New York, NY, United States: Nova Science Publishers.

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Name Description MIMEType Size Downloads
Author Vogels, Annick
Scheermeyer, Elly
Title of chapter Coordination of the multidisciplinary treatment efforts
Title of book Prader-Willi Syndrome
Place of Publication New York, NY, United States
Publisher Nova Science Publishers
Publication Year 2013
Sub-type Critical review of research, literature review, critical commentary
Series Congenital Disorders: Laboratory and Clinical Research
ISBN 9781626189935
Editor Charlotte Höybye
Chapter number 19
Start page 229
End page 254
Total pages 26
Total chapters 23
Collection year 2014
Language eng
Formatted Abstract/Summary
Multidisciplinary care is defined as the care provided by a team of professionals from different disciplines with the aim to deliver care that addresses the individual‘s health as well as emotional and psychosocial needs. Although multidisciplinary care of the Prader-Willi Syndrome (PWS) is now considered as beneficial, setting up such a clinic is complex and requires commitment from all the participating professionals. In the first part of this chapter we provide an overview of the current recommendations for the diagnosis and multidisciplinary management of Prader-Willi Syndrome throughout the life span.The second part of this chapter describes the multidisciplinary efforts in 24 centres from 16 countries. We provide a short overview of the efforts made in these different countries including the practical organisations, the availability of growth hormone (GH), the benefits, limitations and future opportunities of these clinics, and their research activities.
Keyword Prader Willi syndrome
Multidisciplinary care
Q-Index Code B1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Book Chapter
Collections: Official 2014 Collection
School of Medicine Publications
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Created: Sun, 15 Sep 2013, 10:03:40 EST by Elly Scheermeyer on behalf of Child Health Research Centre