Families and the transition to specialist palliative care

Kirby, Emma, Broom, Alex, Good, Phillip, Wootton, Julia and Adams, Jon (2014) Families and the transition to specialist palliative care. Mortality, 19 4: 323-341. doi:10.1080/13576275.2014.916258

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Author Kirby, Emma
Broom, Alex
Good, Phillip
Wootton, Julia
Adams, Jon
Title Families and the transition to specialist palliative care
Journal name Mortality   Check publisher's open access policy
ISSN 1357-6275
Publication date 2014
Year available 2014
Sub-type Article (original research)
DOI 10.1080/13576275.2014.916258
Open Access Status
Volume 19
Issue 4
Start page 323
End page 341
Total pages 19
Place of publication Abingdon, Oxon, United Kingdom
Publisher Routledge
Collection year 2015
Language eng
Formatted abstract
Families play important roles in transitions to end-of-life care, yet we know little about the social relations between doctors and families at the point of referral to specialist palliative care. In this study, we explore how medical specialists negotiated the transition to specialist palliative care with families. Drawing on data from 20 qualitative interviews, we examine data accounts about the roles of family members in discussions with clinical specialists about palliative care, and how families shape interpersonal dynamics. Our results indicate that families fulfil important ‘functions’ and ‘roles’ in these delicate and emotionally laden conversations. Specialists’ accounts articulated referral processes as distinctly relational moments, with families viewed as potential ‘resources’ but also as ‘complications’, in attempts to encourage the ‘smooth’ transition to end-of-life care. On the basis of these results, we argue that further attention should be paid to the centrality of families in key moments in care (and communication therein) and how they may be utilised, managed and experienced by a range of health professionals.
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2015 Collection
School of Medicine Publications
School of Social Science Publications
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Citation counts: Scopus Citation Count Cited 3 times in Scopus Article | Citations
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Created: Wed, 04 Sep 2013, 12:03:50 EST by Mary Anne Patton on behalf of School of Social Science