What makes a successful peer-led aphasia support group?

Tregea, Shelley and Brown, Kyla (2013) What makes a successful peer-led aphasia support group?. Aphasiology, 27 5: 581-598. doi:10.1080/02687038.2013.796506

Author Tregea, Shelley
Brown, Kyla
Title What makes a successful peer-led aphasia support group?
Journal name Aphasiology   Check publisher's open access policy
ISSN 0268-7038
Publication date 2013-05
Year available 2013
Sub-type Article (original research)
DOI 10.1080/02687038.2013.796506
Volume 27
Issue 5
Start page 581
End page 598
Total pages 18
Place of publication Oxon, United Kingdom
Publisher Routledge
Collection year 2014
Language eng
Formatted abstract
Background: People with aphasia frequently report reduced social networks as well as a desire for increased social interaction. Individuals with aphasia and speech-language pathologists have identified peer support as an important component of adjusting to post-stroke changes and learning to live successfully with aphasia. Peer-led aphasia support groups can provide greater, long-term access to peer support and social communication opportunities for people with aphasia and their families. However, more research is needed to facilitate their development and sustainability in local communities.

Aims: The primary aim of this study was to identify the core components of a successful peer-led aphasia support group from the perspective of people with aphasia and their family members. A second aim of the study was to explore the information and support needs of peer leaders in starting and running a group.

Methods & Procedures: The qualitative research approach of focused ethnography was used to understand and interpret the functioning of peer-led aphasia support groups in the community. Twenty-six people, who were attending a peer-led aphasia support group, participated in the study. Participants comprised 19 people with aphasia (mean age 64.8 ± 12.9) and seven family members (mean age 58.3 ± 9.0), including three peer leaders. Data were collected from the following sources: participant observation; focus group discussion; individual interview; and written artefacts. Thematic analysis of the focus group and interview transcripts was conducted, while field notes and written artefacts were used in triangulation of the identified themes.

Outcomes & Results: The findings indicate that a number of themes are important for the successful functioning of a peer-led aphasia support group, including friendship, informality, a supportive communication environment, providing support and practical considerations for the timing and location of meetings. Factors that facilitated peer leaders to start and run groups included informational support, practical support, attracting new members, time and organisation, and particular personal qualities.

Conclusions: The findings confirm the positive and empowering nature of peer-led aphasia support groups that provide opportunities for developing genuine friendships and authentic communicative interactions in a supportive environment. Results of the study provide useful guidelines to assist people with aphasia in developing and sustaining peer-led aphasia support groups in the community.
Keyword Aphasia
Peer support
Focused ethnography
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2014 Collection
School of Health and Rehabilitation Sciences Publications
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Citation counts: TR Web of Science Citation Count  Cited 5 times in Thomson Reuters Web of Science Article | Citations
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