Best Practices in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: The Transition Process and Medical and Psychosocial Issues A Scientific Statement From the American Heart Association

Sable, Craig, Foster, Elyse, Uzark, Karen, Bjornsen, Katherine, Canobbio, Mary M., Connolly, Heidi M., Graham, Thomas P., Gurvitz, Michelle Z., Kovacs, Adrienne, Meadows, Alison K., Reid, Graham J., Reiss, John G., Rosenbaum, Kenneth N., Sagerman, Paul J., Saidi, Arwa, Schonberg, Rhonda, Shah, Sangeeta, Tong, Elizabeth and Williams, Roberta G. (2011) Best Practices in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: The Transition Process and Medical and Psychosocial Issues A Scientific Statement From the American Heart Association. Circulation, 123 13: 1454-1485. doi:10.1161/CIR.0b013e3182107c56


Author Sable, Craig
Foster, Elyse
Uzark, Karen
Bjornsen, Katherine
Canobbio, Mary M.
Connolly, Heidi M.
Graham, Thomas P.
Gurvitz, Michelle Z.
Kovacs, Adrienne
Meadows, Alison K.
Reid, Graham J.
Reiss, John G.
Rosenbaum, Kenneth N.
Sagerman, Paul J.
Saidi, Arwa
Schonberg, Rhonda
Shah, Sangeeta
Tong, Elizabeth
Williams, Roberta G.
Title Best Practices in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: The Transition Process and Medical and Psychosocial Issues A Scientific Statement From the American Heart Association
Journal name Circulation   Check publisher's open access policy
ISSN 0009-7322
1524-4539
Publication date 2011-04
Year available 2011
Sub-type Article (original research)
DOI 10.1161/CIR.0b013e3182107c56
Open Access Status
Volume 123
Issue 13
Start page 1454
End page 1485
Total pages 32
Place of publication Philadelphia, PA United States
Publisher Lippincott Williams and Wilkins
Collection year 2011
Language eng
Formatted abstract
 Many children born with complex childhood illnesses that historically caused early death are now surviving into adulthood with the expectation of leading meaningful and productive lives. They will ultimately need to transition their care from pediatric to adult-centered care. Unfortunately, in the absence of structured programs to guide this transition, there is often delayed or inappropriate care, improper timing of the transfer of care, and undue emotional and financial stress on the patients, their families, and the healthcare system. At its worst, and as frequently happens now, patients are lost to appropriate follow-up. In fact, the number of adults with congenital heart disease (CHD) in the United States is rising exponentially and now exceeds 1 000 000.1,–,7 At least half of these patients may have complex CHD. Fewer than 30% of adults with CHD are seen by appropriate specialized providers. Fewer than 15% of these patients, who are seen in specialty adult CHD (ACHD) clinics, have CHD that is classified as severe.8 Thus, adolescents with CHD constitute a growing population of individuals for whom a well-planned and well-executed “transition process” is essential.
Keyword AHA Scientific Statements
Heart Defects
Congenital
Adolescence
Patient Centered Care
Quality of life (QOL)
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status Non-UQ

Document type: Journal Article
Sub-type: Article (original research)
Collection: School of Medicine Publications
 
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