Sorrow, coping and resiliency: parents of children with cerebral palsy share their experiences.

Whittingham, Koa, Wee, Diana, Sanders, Matthew R. and Boyd, Roslyn (2013) Sorrow, coping and resiliency: parents of children with cerebral palsy share their experiences.. Disability and Rehabilitation, 35 17: 1447-1452. doi:10.3109/09638288.2012.737081

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Author Whittingham, Koa
Wee, Diana
Sanders, Matthew R.
Boyd, Roslyn
Title Sorrow, coping and resiliency: parents of children with cerebral palsy share their experiences.
Journal name Disability and Rehabilitation   Check publisher's open access policy
ISSN 0963-8288
Publication date 2013-08
Year available 2012
Sub-type Article (original research)
DOI 10.3109/09638288.2012.737081
Open Access Status File (Author Post-print)
Volume 35
Issue 17
Start page 1447
End page 1452
Total pages 6
Place of publication London, United Kingdom
Publisher Informa Healthcare
Collection year 2013
Language eng
Formatted abstract
Purpose: To explore the grieving, coping and resiliency experiences of parents of children with cerebral palsy (CP) and to investigate the suitability of chronic sorrow theory as a framework to understand those experiences.

This study combined focus groups with a web-based cross-sectional survey to explore chronic sorrow in parents of children with CP. Eight parents of children with CP participated in focus groups. The discussion was transcribed verbatim and thematic analysis was performed. A further 94 parents participated in the web-based survey study in which they completed the Adapted Burke Questionnaire on chronic sorrow. A content analysis of responses was used to confirm the primary qualitative analysis.

The reports of parents in the focus group were consistent with chronic sorrow theory, as were the responses of parents to the web-based survey. Some parents found the diagnosis itself a distressing time whereas others found it a relief. Parents reported that times of medical and allied health intervention were particularly challenging.

Conclusion: Chronic sorry theory is a useful way of understanding the experiences of parents of children with CP. It is recommended that health practitioners are mindful that, even years after diagnosis, parents of children with CP may experience intensified chronic sorrow symptoms following a triggering event and that this is normal.
Keyword Cerebral palsy
Chronic sorrow
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Posted online on November 20, 2012

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Created: Thu, 11 Apr 2013, 11:32:10 EST by Naomi Westwood on behalf of Paediatrics & Child Health - RBWH