Ask: a health advocacy program for adolescents with an intellectual disability: a cluster randomised controlled trial

Lennox, Nicholas, Ware, Robert, Carrington, Suzanne, O'Callaghan, Michael, Williams, Gail, McPherson, Lyn and Bain, Chris (2012) Ask: a health advocacy program for adolescents with an intellectual disability: a cluster randomised controlled trial. BMC Public Health, 12 750.1-750.26. doi:10.1186/1471-2458-12-750


Author Lennox, Nicholas
Ware, Robert
Carrington, Suzanne
O'Callaghan, Michael
Williams, Gail
McPherson, Lyn
Bain, Chris
Title Ask: a health advocacy program for adolescents with an intellectual disability: a cluster randomised controlled trial
Formatted title
Ask: a health advocacy program for adolescents with an intellectual disability: a cluster randomised controlled trial
Journal name BMC Public Health   Check publisher's open access policy
ISSN 1471-2458
Publication date 2012-09-07
Sub-type Article (original research)
DOI 10.1186/1471-2458-12-750
Open Access Status DOI
Volume 12
Start page 750.1
End page 750.26
Total pages 26
Place of publication London, United Kingdom
Publisher BioMed Central
Collection year 2013
Language eng
Formatted abstract
Background: Adolescents with intellectual disability often have poor health and healthcare. This is partly as a consequence of poor communication and recall difficulties, and the possible loss of specialised paediatric services.

Methods: A cluster randomised trial was conducted with adolescents with intellectual disability to investigate a health intervention package to enhance interactions among adolescents with intellectual disability, their parents/carers, and general practitioners (GPs). The trial took place in Queensland, Australia, between February 2007 and September 2010. The intervention package was designed to improve communication with health professionals and families' organisation of health information, and to increase clinical activities beneficial to improved health outcomes. It consisted of the Comprehensive Health Assessment Program (CHAP), a one-off health check, and the Ask Health Diary, designed for on-going use. Participants were drawn from Special Education Schools and Special Education Units. The education component of the intervention was delivered as part of the school curriculum. Educators were surveyed at baseline and followed-up four months later. Carers were surveyed at baseline and after 26 months. Evidence of health promotion, disease prevention and case-finding activities were extracted from GPs clinical records. Qualitative interviews of educators occurred after completion of the educational component of the intervention and with adolescents and carers after the CHAP.

Discussion: Adolescents with intellectual disability have difficulty obtaining many health services and often find it difficult to become empowered to improve and protect their health. The health intervention package proposed may aid them by augmenting communication, improving documentation of health encounters, and improving access to, and quality of, GP care. Recruitment strategies to consider for future studies in this population include ensuring potential participants can identify themselves with the individuals used in promotional study material, making direct contact with their families at the start of the study, and closely monitoring the implementation of the educational intervention
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Article #750

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2013 Collection
School of Public Health Publications
School of Medicine Publications
 
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Citation counts: TR Web of Science Citation Count  Cited 12 times in Thomson Reuters Web of Science Article | Citations
Scopus Citation Count Cited 15 times in Scopus Article | Citations
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Created: Thu, 13 Dec 2012, 01:04:50 EST by Geraldine Fitzgerald on behalf of School of Public Health