Carers of people with dementia: respite use and non-use

Beattie, E., Fielding, E., Neville, C., Readford, M. and Gresham, M. (2012). Carers of people with dementia: respite use and non-use. In: Australian Association of Gerontology, 45th National Conference, Brisbane, Australia, (4-4). 20 – 23 November 2012. doi:10.1111/j.1741-6612.2012.00655.x

Author Beattie, E.
Fielding, E.
Neville, C.
Readford, M.
Gresham, M.
Title of paper Carers of people with dementia: respite use and non-use
Conference name Australian Association of Gerontology, 45th National Conference
Conference location Brisbane, Australia
Conference dates 20 – 23 November 2012
Journal name Australasian Journal on Ageing   Check publisher's open access policy
Place of Publication Richmond, VIC, Australia
Publisher Wiley-Blackwell Publishing Asia
Publication Year 2012
Sub-type Oral presentation
DOI 10.1111/j.1741-6612.2012.00655.x
ISSN 1440-6381
Volume 31
Issue Suppl. 2
Start page 4
End page 4
Total pages 1
Language eng
Formatted Abstract/Summary
The majority of care for people with dementia is provided by family carers. One major Government-funded carer support mechanism is respite. This presentation will explore the reasons why carers report they use or do not use available
respite options (in home; care centre; residential; emergency; other).

Data were obtained from a national phone and web-based survey of current carers (N = 336) and included open-ended responses. Over three-quarters (77%) of carers had used some kind of respite service in the last year, with many having used multiple types. Approximately half had used each of In-Home, Care Centre and Residential respite, with 6% using Emergency and 19% an ‘other’ respite type. Reasons for using respite varied and included: needing a break from the caring role; enabling socialisation or travel; allowing carer to work; attending to personal health needs;
or performing household duties, e.g. regular shopping. The majority (over 90% for all respite types) of carers wanted to continue using the respite services recently received. 

Fifty-eight (17%) of carers had been refused some (or multiple) type(s) of respite service. Reasons for refusal included: being over their annual limit for that particular service (a small number of carers); lack of place availability (a relatively large number, especially for residential respite); lack of dementia-specifi c places; issues related to physical or behavioural conditions of the person with dementia (e.g. incontinence,
aggression); and did not meet eligibility criteria (e.g. age of person with dementia). Among those carers who had never used respite (n = 77; 23%), the most frequently given reason (multiple reasons possible) was ‘never needed to use respite,’ followed by ‘person with dementia refuses to attend respite.’ While results confi rmed the crucial role of respite for carers the refusal of respite for those in need is of concern
and warrants further research.

Q-Index Code CX
Q-Index Status Provisional Code
Institutional Status UQ

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Created: Wed, 05 Dec 2012, 09:48:38 EST by Dr Christine Neville on behalf of School of Nursing, Midwifery and Social Work