A pilot study of the effectiveness of home teleconsultations in paediatric palliative care

Bradford, Natalie, Young, Jeanine, Armfield, Ningel R., Bensink, Mark E., Pedersen, Lee-anne, Herbert, Anthony and Smith, Anthony C. (2012) A pilot study of the effectiveness of home teleconsultations in paediatric palliative care. Journal of Telemedicine and Telecare, 18 8: 438-442. doi:10.1258/jtt.2012.GTH103

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Author Bradford, Natalie
Young, Jeanine
Armfield, Ningel R.
Bensink, Mark E.
Pedersen, Lee-anne
Herbert, Anthony
Smith, Anthony C.
Title A pilot study of the effectiveness of home teleconsultations in paediatric palliative care
Journal name Journal of Telemedicine and Telecare   Check publisher's open access policy
ISSN 1357-633X
1758-1109
Publication date 2012
Sub-type Article (original research)
DOI 10.1258/jtt.2012.GTH103
Volume 18
Issue 8
Start page 438
End page 442
Total pages 5
Place of publication London, United Kingdom
Publisher Royal Society of Medicine Press
Collection year 2013
Language eng
Abstract We conducted a pilot study to investigate the effectiveness of a home telehealth service for paediatric palliative care consultations. Over a 10 week period, 14 of the 17 caregivers approached to be part of the study agreed to participate. Families were allocated, non-randomly, to a control group (usual care) or an intervention group (usual care with the addition of home telehealth consultations). The primary outcome measure was quality-of-life score. Caregivers were surveyed for up to 99 days following recruitment. A descriptive analysis of the quality-of-life data showed no differences between caregivers in the two groups. However, important lessons were learnt regarding factors which influence the success of studies in this population group, and the domains of caregiver quality-of-life that warrant intervention. Palliative care is complex, and multiple interventions and supports are required if care is to be managed at home. Home telehealth consultations are a feasible and acceptable means of facilitating a palliative care consultation which can reduce the burden on families at a distressing time.
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Published online on: 15 November 2012.

 
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Created: Tue, 20 Nov 2012, 11:13:45 EST by Burke, Eliza on behalf of Centre for On-Line Health