Paediatric palliative care services in Queensland: an exploration of the barriers, gaps and plans for service development

Bradford, Natalie, Bensink, Mark, Irving, Helen, Murray, Judith, Pedersen, Lee-Anne, Roylance, Julie, Crowe, Liz and Herbert, Anthony (2012) Paediatric palliative care services in Queensland: an exploration of the barriers, gaps and plans for service development. Neonatal, Paediatric and Child Health Nursing, 15 1: 2-7.

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Author Bradford, Natalie
Bensink, Mark
Irving, Helen
Murray, Judith
Pedersen, Lee-Anne
Roylance, Julie
Crowe, Liz
Herbert, Anthony
Title Paediatric palliative care services in Queensland: an exploration of the barriers, gaps and plans for service development
Journal name Neonatal, Paediatric and Child Health Nursing   Check publisher's open access policy
ISSN 1441-6638
Publication date 2012-03
Sub-type Article (original research)
Volume 15
Issue 1
Start page 2
End page 7
Total pages 6
Place of publication West Leederville, WA, Australia
Publisher Cambridge Publishing
Collection year 2013
Language eng
Formatted abstract
Background The Paediatric Palliative Care Service (PPCS) of the Royal Children's Hospital (RCH) in Brisbane was established in 2009. This service has evolved from the hospital's paediatric oncology palliative care service and works collaboratively with primary health care teams in a consultative model.

Aims With the expanded scope of caring for all children diagnosed with life-threatening conditions in mind, a forum was held in late 2009 to identify barriers and gaps and to plan for the future of the PPCS.

Design Stakeholders, including medical staff specialists (24%), nurses (32%), allied health (24%), community support group representatives (16%), corporate policy representatives (2%) and bereaved parents (2%) from South East Queensland (SEQ) were invited to attend.

Results A number of barriers were highlighted including: equity in access to services; awareness, understanding and fear associated with this work; experience of health professionals; funding and resources. A lack of respite options, the need for further education, improved collaboration and improved communication between services were identified as existing gaps.

Conclusion The forum provided an opportunity to gather expert and experienced health professionals in paediatric palliative care to discuss the issues and assist in the planning for the future direction of the PPCS. This report may provide a valuable insight for other services.
Keyword Palliative care
Community health nursing
Health services accessibility
Home care services
Paediatric
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2013 Collection
School of Medicine Publications
 
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Created: Wed, 06 Jun 2012, 11:16:59 EST by Burke, Eliza on behalf of Centre for On-Line Health