Service users’ participation in the research agenda

Townsend C. E., Rushworth, J. and McInnes, K. (2010). Service users’ participation in the research agenda. In: Abstracts of the Third International Conference of IASSID-Europe. 3rd International Conference of IASSID-Europe, Rome, Italy, (456-456). 20-22 October 2010. doi:10.1111/j.1468-3148.2010.00585.x


Author Townsend C. E.
Rushworth, J.
McInnes, K.
Title of paper Service users’ participation in the research agenda
Conference name 3rd International Conference of IASSID-Europe
Conference location Rome, Italy
Conference dates 20-22 October 2010
Proceedings title Abstracts of the Third International Conference of IASSID-Europe   Check publisher's open access policy
Journal name Journal of Applied Research in Intellectual Disabilities   Check publisher's open access policy
Place of Publication Oxford, United Kingdom
Publisher Wiley-Blackwell Publishing
Publication Year 2010
Sub-type Published abstract
DOI 10.1111/j.1468-3148.2010.00585.x
ISSN 1360-2322
1468-3148
Volume 23
Issue 5
Start page 456
End page 456
Total pages 1
Language eng
Formatted Abstract/Summary
Aim: The Intellectual Disability Research Agenda Template was presented at the
IASSID 2nd Asia Pacific Regional Congress 2009. It conceptualizes a comprehensive
research agenda for ID and challenging behaviour. In 2010, validation of the
Template was sought through consultation with service users. Method: Consultations
were conducted with 10 individuals with ID and challenging behaviour.
Data collection involved semi-structured, open- ended interviews. Content analysis
was organized in terms of the Template domains. Individual perspectives,
emergent patterns and common themes were identified. Results: Service users
contributed important insights as to what should be included in a research
agenda. As with people who do not have ID, some areas of the research agenda
are of more importance than others and preferences vary between individuals.
Specific strategies were found to be important to ensure people with ID and
challenging behaviour could participate in discussions about the ID research
agenda. Conclusion: Published literature regarding consultation with service
users about the research agenda is extremely limited. The opinions of 10 people
with ID and challenging behaviour will be presented, the methodological
approaches undertaken to facilitate service participation will be discussed
and the validity of the Intellectual Disability Research Agenda Template will be
considered.
Q-Index Code CX
Q-Index Status Provisional Code
Institutional Status UQ

Document type: Conference Paper
Collection: Faculty of Humanities and Social Sciences - Publications
 
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Created: Thu, 22 Mar 2012, 16:14:20 EST by Ms Clare Townsend-white on behalf of Faculty of Social & Behavioural Sciences