Living successfully with aphasia: Family members share their views

Brown, Kyla, Worrall, Linda, Davidson, Bronwyn and Howe, Tami (2011) Living successfully with aphasia: Family members share their views. Topics in Stroke Rehabilitation, 18 5: 536-548. doi:10.1310/tsr1805-536

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Author Brown, Kyla
Worrall, Linda
Davidson, Bronwyn
Howe, Tami
Title Living successfully with aphasia: Family members share their views
Journal name Topics in Stroke Rehabilitation   Check publisher's open access policy
ISSN 1074-9357
Publication date 2011-09
Sub-type Article (original research)
DOI 10.1310/tsr1805-536
Open Access Status File (Publisher version)
Volume 18
Issue 5
Start page 536
End page 548
Total pages 13
Place of publication Leeds, W Yorks, United Kingdom
Publisher Maney Publishing
Collection year 2012
Language eng
Formatted abstract
Language and lifestyle changes experienced following the onset of aphasia extend beyond the individual to impact family members of persons with aphasia. Research exploring the meaning of living successfully with aphasia has explored the perspectives of individuals with aphasia and speech-language pathologists. Family members’ views of living successfully with aphasia may also contribute valuable insights into positive adaptive processes and factors that may influence clinical interventions and community-based services for individuals with aphasia and their families.
Purpose: To explore, from the perspectives of family members of individuals with aphasia, the meaning of living successfully with aphasia.
Method: Twenty-four family members (nominated by individuals with aphasia) participated in semistructured in-depth interviews about living successfully with aphasia. Interviews were transcribed verbatim and analyzed using interpretative phenomenological analysis to identify themes relating to the meaning of living successfully with aphasia.
Results: Seven themes were identified from analysis of family member participant transcripts: getting involved in life, support for the person with aphasia, communication, family members’ own needs, putting life in perspective, focusing on and celebrating strengths and improvements, and experiences with services.
Conclusion: Findings provide evidence to support previous research indicating that aphasia affects the whole family and not just an individual. The inclusion of family members as part of the rehabilitation team is indicated. Family members’ needs and priorities must be considered in conceptualizing living successfully with aphasia to ensure family members are included in intervention programs.
Keyword Aphasia
Phenomenological research
Qualitative studies
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes September-October 2011 - Psychological, Social, and Quality of Life Implications of Stroke

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2012 Collection
School of Health and Rehabilitation Sciences Publications
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Citation counts: TR Web of Science Citation Count  Cited 14 times in Thomson Reuters Web of Science Article | Citations
Scopus Citation Count Cited 16 times in Scopus Article | Citations
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Created: Mon, 20 Feb 2012, 14:00:06 EST by Professor Linda Worrall on behalf of School of Health & Rehabilitation Sciences