Nursing the patient with developmental disability in hospital: Roles of paid carers

Hemsley, Bronwyn, Balandin, Susan and Worrall, Linda (2011) Nursing the patient with developmental disability in hospital: Roles of paid carers. Qualitative Health Research, 21 12: 1632-1642. doi:10.1177/1049732311415289

Author Hemsley, Bronwyn
Balandin, Susan
Worrall, Linda
Title Nursing the patient with developmental disability in hospital: Roles of paid carers
Journal name Qualitative Health Research   Check publisher's open access policy
ISSN 1049-7323
Publication date 2011
Year available 2011
Sub-type Article (original research)
DOI 10.1177/1049732311415289
Volume 21
Issue 12
Start page 1632
End page 1642
Total pages 11
Place of publication Thousand Oaks, CA, United States
Publisher Sage Publications
Collection year 2012
Language eng
Abstract Our aim in this narrative inquiry was to understand the roles of paid carers supporting adults with developmental disability and complex communication needs in hospital, from the perspectives of 15 paid carers, 15 adults with developmental disability, and 15 hospital nurses. Results demonstrated that paid carers have an important role in supporting the adult with disability, providing information, delivering basic care, and facilitating communication. Stories reflected paid carer volunteerism; lack of orientation of carers and hospital staff to the paid carers’ roles; blurred role boundaries between paid carers, family carers, and nurses; and paid carers being uncertain about their own responsibilities for staff and patient safety. New policies and practice guidelines are needed to guide both health and disability services in clarifying paid carer roles and role boundaries, and to enable paid carers and hospital staff to work together effectively on the ward in the care of adults with developmental disability.
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2012 Collection
School of Health and Rehabilitation Sciences Publications
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Citation counts: TR Web of Science Citation Count  Cited 9 times in Thomson Reuters Web of Science Article | Citations
Scopus Citation Count Cited 11 times in Scopus Article | Citations
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Created: Mon, 20 Feb 2012, 13:32:19 EST by Professor Linda Worrall on behalf of School of Health & Rehabilitation Sciences