Psychological distress and unmet supportive care needs in cancer patients and carers who contact cancer helplines

Chambers, S. K., Girgis, A., Occhipinti, S., Hutchinson, S., Turner, J., Morris, B. and Dunn, J. (2011) Psychological distress and unmet supportive care needs in cancer patients and carers who contact cancer helplines. European Journal of Cancer Care, 21 2: 213-233. doi:10.1111/j.1365-2354.2011.01288.x


Author Chambers, S. K.
Girgis, A.
Occhipinti, S.
Hutchinson, S.
Turner, J.
Morris, B.
Dunn, J.
Title Psychological distress and unmet supportive care needs in cancer patients and carers who contact cancer helplines
Journal name European Journal of Cancer Care   Check publisher's open access policy
ISSN 0961-5423
1365-2354
Publication date 2011-09-05
Sub-type Article (original research)
DOI 10.1111/j.1365-2354.2011.01288.x
Volume 21
Issue 2
Start page 213
End page 233
Total pages 21
Place of publication Oxford, United Kingdom
Publisher Wiley-Blackwell Publishing
Collection year 2012
Language eng
Abstract Cancer information services are a highly accessible source of support for people affected by cancer. To date the nature and extent of distress experienced by such callers and their unmet support needs have not been well described. A cross-sectional survey of 354 cancer patients and 336 carers who reported elevated distress on contact with a cancer information service assessed socio-demographic variables; anxiety, depression and somatization; unmet supportive care needs; cancer-specific distress; presenting problems; post-traumatic growth. Adjustment to cancer was most commonly reported; followed by anxiety. In all, 53.4% of patients and 45.2% of carers reached caseness in anxiety, depression or somatization. Carers had higher distress ratings and intrusive thinking compared to patients; whereas patients had higher somatization. For patients, most unmet supportive care needs were psychological; for carers unmet needs were related to health care services and information related to the person diagnosed with cancer. Being single, unemployed, in treatment, having higher initial distress scores, higher intrusion and avoidance predicted poorer outcomes. Information service frameworks should include distress screening and clear triage and referral processes for psychological care.
Keyword Psychological stress
Cancer
Supportive care needs
Intervention
Telephone information service
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Article first published online: 5 SEP 2011

 
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Created: Mon, 03 Oct 2011, 12:28:15 EST by Sheila Cleary on behalf of Psychiatry - Royal Brisbane and Women's Hospital