Mothers’ and fathers’ roles in caring for an adult child with an intellectual disability

Rowbotham, Michelle, Carroll, Annemaree and Cuskelly, Monica (2011) Mothers’ and fathers’ roles in caring for an adult child with an intellectual disability. International Journal of Disability, Development and Education, 58 3: 223-240. doi:10.1080/1034912X.2011.598396

Author Rowbotham, Michelle
Carroll, Annemaree
Cuskelly, Monica
Title Mothers’ and fathers’ roles in caring for an adult child with an intellectual disability
Journal name International Journal of Disability, Development and Education   Check publisher's open access policy
ISSN 1034-912X
Publication date 2011-09-08
Sub-type Article (original research)
DOI 10.1080/1034912X.2011.598396
Volume 58
Issue 3
Start page 223
End page 240
Total pages 18
Place of publication Abingdon, Oxon, United Kingdom
Publisher Routledge
Collection year 2012
Language eng
Abstract To date, there have been few studies of mothers’ and fathers’ roles in caring for their adult children with intellectual disabilities. The present study investigated the care-giving roles of mother and father couples caring for their adult offspring with an intellectual disability, their psychological health, and the demands and satisfaction of their care-giving roles. Twelve Anglo-Australian middle-aged mother and father couples with an adult child with intellectual disability (mean age = 24 years) participated in semi-structured interviews about their care-giving roles and completed a series of questionnaires pertaining to care-giving difficulties and satisfaction, hassles and uplifts, and general health. Findings indicated that an extremely high proportion of both mothers and fathers were in the clinical range for social dysfunction, anxiety/insomnia, and somatic complaints, although levels of depression were relatively low. The present study found that mothers undertake more daily care-giving tasks than fathers, but that the range of tasks is similar. Mothers also reported significantly more care-giving difficulties and satisfaction than fathers. Associations between measures differed somewhat for the two parent groups, indicating the need for further exploration of both mothers’ and fathers’ experiences.
Keyword Adults with intellectual disabilities
Care-giving demands
Care-giving satisfaction
Parental care-giving
Psychological health
Satisfaction accumulation
Stress proliferation
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2012 Collection
School of Education Publications
Version Filter Type
Citation counts: TR Web of Science Citation Count  Cited 8 times in Thomson Reuters Web of Science Article | Citations
Scopus Citation Count Cited 8 times in Scopus Article | Citations
Google Scholar Search Google Scholar
Created: Thu, 29 Sep 2011, 08:33:16 EST by Claire Backhouse on behalf of School of Education