Experiences of care: Perspectives of carers of adults with traumatic brain injury

O'Callaghan, Anna M., McAllister, Lindy and Wilson, Linda (2011) Experiences of care: Perspectives of carers of adults with traumatic brain injury. International Journal of Speech-Language Pathology, 13 3: 218-226. doi:10.3109/17549507.2011.549240

Author O'Callaghan, Anna M.
McAllister, Lindy
Wilson, Linda
Title Experiences of care: Perspectives of carers of adults with traumatic brain injury
Journal name International Journal of Speech-Language Pathology   Check publisher's open access policy
ISSN 1754-9507
Publication date 2011-06
Sub-type Article (original research)
DOI 10.3109/17549507.2011.549240
Volume 13
Issue 3
Start page 218
End page 226
Total pages 9
Place of publication Melbourne, VIC, Australia
Publisher Informa Healthcare
Collection year 2012
Language eng
Abstract This paper describes the results of a survey that explored the experiences of carers when accessing rehabilitative services alongside their family member with a moderate–severe TBI. The 184 carers who completed these surveys reflected retrospectively on the care they received. The results of this study indicated that 61% of the carer respondents recollected accessing inpatient rehabilitation following their acute care. However, following inpatient discharge only 33% of carers reported receiving ongoing services. One quarter of carers stated they received inadequate information while transitioning through their healthcare journey and fewer than 20% of carers recollected receiving any formal support service. The results of this study showed that as carers transitioned through the healthcare journey with their family member with TBI, health services progressively declined. As this occurred, carers' satisfaction with services reduced, while their responsibilities for caring increased. This trend is concerning given the needs of carers have been shown to change over time and increase if not addressed. This paper describes both carer experience following TBI in Australia and encourages clinicians to advocate for carers needs when planning and providing rehabilitation services.
Keyword Traumatic brain injury
Family members
Survey methodology
Healthcare journey
Continuum of care
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2012 Collection
School of Medicine Publications
Version Filter Type
Citation counts: TR Web of Science Citation Count  Cited 11 times in Thomson Reuters Web of Science Article | Citations
Scopus Citation Count Cited 12 times in Scopus Article | Citations
Google Scholar Search Google Scholar
Created: Sun, 11 Sep 2011, 09:12:07 EST by System User on behalf of School of Medicine