Responding to the challenges of parenting a child with cerebral palsy: A focus group

Whittingham, Koa, Wee, Diana, Sanders, Matthew and Boyd, Roslyn (2011) Responding to the challenges of parenting a child with cerebral palsy: A focus group. Disability and Rehabilitation, 33 17-18: 1557-1567. doi:10.3109/09638288.2010.535090

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Author Whittingham, Koa
Wee, Diana
Sanders, Matthew
Boyd, Roslyn
Title Responding to the challenges of parenting a child with cerebral palsy: A focus group
Journal name Disability and Rehabilitation   Check publisher's open access policy
ISSN 0963-8288
Publication date 2011
Year available 2010
Sub-type Article (original research)
DOI 10.3109/09638288.2010.535090
Volume 33
Issue 17-18
Start page 1557
End page 1567
Total pages 11
Editor Dave Müller
Place of publication London, U.K
Publisher Informa Healthcare
Collection year 2011
Language eng
Formatted abstract
Purpose. To explore the unique parenting challenges that parents of children with cerebral palsy (CP) face and to explore the feasibility of a new parenting intervention, Stepping Stones Triple P (SSTP), for this population.

Method. Focus groups were conducted with parents of children with CP (n = 8) and health professionals with experience in working with families of children with CP (n = 5). The discussion was transcribed verbatim and a descriptive thematic analysis was performed.

Results. Parents stated that knowing whether a particular behaviour is the result of CP or a behavioural issue is challenging. Parents were also keen to promote communication, independence and socialisation in their child. In addition, parents also discussed the challenges of parenting under time pressure, with additional parenting tasks, under public scrutiny and with grief. Both parents and professionals found SSTP to be a feasible and appropriate intervention for parents of children with CP.

Conclusions. The parents of children with CP in this study faced a range of parenting challenges that may be effectively targeted by a parenting intervention. In addition, parents and health professionals found SSTP content acceptable and feasible for use with parents of children with CP.
Keyword Cerebral palsy
Parenting intervention
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Posted online on December 2, 2010.

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2011 Collection
School of Medicine Publications
School of Psychology Publications
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Citation counts: TR Web of Science Citation Count  Cited 9 times in Thomson Reuters Web of Science Article | Citations
Scopus Citation Count Cited 10 times in Scopus Article | Citations
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Created: Fri, 18 Mar 2011, 14:59:54 EST by Lucy O'Brien on behalf of School of Medicine