A systematic review of the psychometric properties of Quality of Life measures for school aged children with cerebral palsy

Carlon, Stacey, Shields, Nora, Yong, Katherine, Gilmore, Rose, Sakzewski, Leanne and Boyd, Roslyn (2010) A systematic review of the psychometric properties of Quality of Life measures for school aged children with cerebral palsy. BMC Pediatrics, 10 81: 1-11. doi:10.1186/1471-2431-10-81


Author Carlon, Stacey
Shields, Nora
Yong, Katherine
Gilmore, Rose
Sakzewski, Leanne
Boyd, Roslyn
Title A systematic review of the psychometric properties of Quality of Life measures for school aged children with cerebral palsy
Journal name BMC Pediatrics   Check publisher's open access policy
ISSN 1471-2431
Publication date 2010-11
Sub-type Article (original research)
DOI 10.1186/1471-2431-10-81
Open Access Status DOI
Volume 10
Issue 81
Start page 1
End page 11
Total pages 11
Editor Melissa Norton
Place of publication London
Publisher BioMed Central
Collection year 2011
Language eng
Formatted abstract
Background: This systematic review aimed to evaluate the psychometric properties and clinical utility of all condition specific outcome measures used to assess quality of life (QOL) in school aged children with cerebral palsy (CP).

Methods: Relevant outcome measures were identified by searching 8 electronic databases, supplemented by citation tracking. Two independent reviewers completed data extraction and analysis of the measures using a modified version of the CanChild Outcome Measures Rating Form.

Results: From the 776 papers identified 5 outcome measures met the inclusion criteria: the Care and Comfort Hypertonicity Questionnaire (C&CHQ), the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD), CP QOL-Child, DISABKIDS and PedsQL 3.0 CP Module. There was evidence of construct validity for all five measures. Content validity was reported for all measures except PedsQL 3.0. The CPCHILD and CP QOL-Child were the only outcome measures to have reported data on concurrent validity. All measures, with the exception of one (C&CHQ) provided evidence of internal reliability. The CPCHILD and the CP-QOL-Child had evidence of test-retest reliability and DISABKIDS had evidence of inter-rater reliability. There were no published data on the responsiveness of these outcome measures.

Conclusions: The CPCHILD and the CP QOL-Child demonstrated the strongest psychometric properties and clinical utility. Further work is needed, for all measures, on data for sensitivity to change
© 2010 Carlon et al; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
Keyword Health-status
Questionnaire
Validation
Instrument
Framework
Validity
Proxy
CP
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2011 Collection
School of Medicine Publications
 
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Citation counts: TR Web of Science Citation Count  Cited 19 times in Thomson Reuters Web of Science Article | Citations
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Created: Sun, 19 Dec 2010, 00:15:23 EST