Stroke patients' and carers' perception of barriers to accessing stroke information

Eames, Sally, Hoffmann, Tammy, Worrall, Linda and Read, Stephen (2010) Stroke patients' and carers' perception of barriers to accessing stroke information. Topics in Stroke Rehabilitation, 17 2: 69-78. doi:10.1310/tsr1702-69

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Author Eames, Sally
Hoffmann, Tammy
Worrall, Linda
Read, Stephen
Title Stroke patients' and carers' perception of barriers to accessing stroke information
Formatted title
Stroke patients’ and carers’ perception of barriers to accessing stroke information
Journal name Topics in Stroke Rehabilitation   Check publisher's open access policy
ISSN 1074-9357
Publication date 2010-03
Sub-type Article (original research)
DOI 10.1310/tsr1702-69
Open Access Status File (Publisher version)
Volume 17
Issue 2
Start page 69
End page 78
Total pages 10
Place of publication Leeds, W Yorks, United Kingdom
Publisher Maney Publishing
Collection year 2011
Language eng
Formatted abstract
Purpose: Education is a key component of post stroke care, but patients and carers often report dissatisfaction with information provided. A small number of studies have reported challenges surrounding the provision of information to this population, but patients’ perspectives have not been explored in detail. The aim of this study was to identify patients’ and carers’ perceived barriers to accessing and understanding information about stroke.

Method: Interviews were conducted with patients and their carers prior to and 3 months following discharge from an acute stroke unit. Transcripts were analysed using qualitative content analysis.

Results: The three categories of barriers were identified: (1) limited availability and suitability of information, (2) barriers in the hospital environment, and (3) patient and carer barriers. Three themes were also identified, namely, (1) who is responsible, (2) communication, and (3) not knowing.

Conclusion: These results have clinical implications for the way in which health professionals coordinate and present stroke information to patients and carers. Addressing these barriers may enhance patients’ and carers’ access to, understanding of, and satisfaction with information about stroke.
© 2010 Thomas Land Publishers, Inc.
Keyword Stroke
Cerebrovascular accident
Health education
Health information
Patient education
Written education materials
Education materials
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Special issue: "Shaping the Future of Stroke Rehabilitation Research and Practice: A Tribute to Kryss McKenna"

Document type: Journal Article
Sub-type: Article (original research)
Collections: UQ Centre for Clinical Research Publications
Official 2011 Collection
School of Health and Rehabilitation Sciences Publications
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Citation counts: TR Web of Science Citation Count  Cited 18 times in Thomson Reuters Web of Science Article | Citations
Scopus Citation Count Cited 19 times in Scopus Article | Citations
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Created: Fri, 12 Nov 2010, 13:39:34 EST by Ms Sally Eames on behalf of School of Health & Rehabilitation Sciences