A systematic review of quality of life instruments for people with ID

Townsend, C. E. and Tran, A. Pham (2010). A systematic review of quality of life instruments for people with ID. In: Abstracts of the Third International Conference of IASSID-Europe. Third International Conference of IASSID-Europe, Rome, Italy, (505-505). 20-22 October 201o. doi:10.1111/j.1468-3148.2010.00590.x


Author Townsend, C. E.
Tran, A. Pham
Title of paper A systematic review of quality of life instruments for people with ID
Conference name Third International Conference of IASSID-Europe
Conference location Rome, Italy
Conference dates 20-22 October 201o
Proceedings title Abstracts of the Third International Conference of IASSID-Europe   Check publisher's open access policy
Journal name Journal of Applied Research in Intellectual Disabilities   Check publisher's open access policy
Place of Publication Oxford, U.K.
Publisher Wiley-Blackwell Publishing
Publication Year 2010
Year available 2010
Sub-type Published abstract
DOI 10.1111/j.1468-3148.2010.00590.x
ISSN 1360-2322
1468-3148
Volume 23
Issue 5
Start page 505
End page 505
Total pages 1
Collection year 2011
Language eng
Formatted Abstract/Summary
Aim: Quality of life (QoL) is a key outcome for people with ID including those who exhibit challenging behaviour. We identified and systematically reviewed QOL instruments designed for people with ID, which have satisfactory reliability and validity.

Method: A systematic search was conducted of Medline, PsycINFO, ERIC, Google Scholar and CINAHL databases to identify studies that examined QOL of individuals with ID. Government agencies and experts were also contacted. Articles were hand searched for studies not identified by the database search. 404 relevant abstracts were read. 274 were relevant and 131 contained a QOL instrument for people with ID with validity and reliability coefficients. There were no instruments specifically designed for people with ID who exhibit challenging behaviour. We developed a set of 18 criteria against which these instruments were evaluated. Results: The final sample consisted of 7 instruments. Measures that came closest to meeting all criteria were the Quality of Life-Questionnaire and The Personal Well-Being Index.

Conclusion:
The number of psychometrically validated QoL instruments for people with ID is limited. A grid to structure critical review will be presented and existing measures that best satisfy selection criteria discussed. Implications for future research will be considered.
© 2010 Blackwell Publishing Ltd
Q-Index Code CX
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Special Issue: Abstracts of the Third International Conference of IASSID-Europe, 20-22 October, 2010, Rome.

Document type: Conference Paper
Collections: Faculty of Humanities and Social Sciences - Publications
Non HERDC
 
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Created: Sun, 17 Oct 2010, 10:08:47 EST