Cancer-related psychosocial research: What are the perspectives of cancer care centre users on participation?

Hepworth, Julie, Robertson, Ann R. R., Jhunjhunwala, Anita, Jarvis, Glyn C. and McVittie, Chris (2011) Cancer-related psychosocial research: What are the perspectives of cancer care centre users on participation?. Supportive Care In Cancer, 19 7: 1029-1035. doi:10.1007/s00520-010-0931-9

Author Hepworth, Julie
Robertson, Ann R. R.
Jhunjhunwala, Anita
Jarvis, Glyn C.
McVittie, Chris
Title Cancer-related psychosocial research: What are the perspectives of cancer care centre users on participation?
Journal name Supportive Care In Cancer   Check publisher's open access policy
ISSN 0941-4355
Publication date 2011-07
Year available 2010
Sub-type Article (original research)
DOI 10.1007/s00520-010-0931-9
Volume 19
Issue 7
Start page 1029
End page 1035
Total pages 7
Place of publication Heidelberg, Germany
Publisher Springer
Collection year 2011
Language eng
Subject C1
920102 Cancer and Related Disorders
111299 Oncology and Carcinogenesis not elsewhere classified
Formatted abstract
To explore the perspectives of cancer care centre users on participation in psychosocial research to inform research design and ethics.

The study is based on a qualitative research design. Fourteen semistructured interviews were carried in people diagnosed with cancer and carers. The interview included four main questions about practical barriers to participation, types of research design, motivating factors and the conduct of research in a cancer care support setting. The data were analysed using qualitative content analysis.

Interviewees demonstrated a willingness to participate in psychosocial research within certain circumstances. There were no practical barriers identified, although they considered payment for research-related travel important. The most acceptable research design was the face-to-face interview and the least preferred was the randomised control trial. The factors that motivated participation were altruism,
valuing research, and making a contribution to the centre. Interviewees supported the conduct of research in cancer care support centres conditional upon delaying recruitment during the initial months of users’ visits and its need to be discreet to avoid deterring visitors from accessing the centre.

The study concludes that the personal interaction between participants and researchers is the most important feature of decision-making by patients/carers to join studies. Taking into account the perspectives of people affected by cancer during the early stages of research design may enhance recruitment and retention and can contribute to the development of research protocols and ethics.
© Springer
Keyword Research participation
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Article in press. Published online 20 June, 2010.

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2011 Collection
School of Nursing, Midwifery and Social Work Publications
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Created: Mon, 26 Jul 2010, 09:36:45 EST by Vicki Percival on behalf of School of Nursing, Midwifery and Social Work