Patient's need for choice and information across the interface between primary and secondary care: A survey

Berendsen, Annette J., de Jong, G. Majella, Schuling, Jan, Bosveld, Henk E. P., de Waal, Margot W. M., Mitchell, Geoffrey K., van der Meer, Klaas and Meyboom-de Jong, Betty (2010) Patient's need for choice and information across the interface between primary and secondary care: A survey. Patient Education And Counseling, 79 1: 100-105. doi:10.1016/j.pec.2009.07.032

Author Berendsen, Annette J.
de Jong, G. Majella
Schuling, Jan
Bosveld, Henk E. P.
de Waal, Margot W. M.
Mitchell, Geoffrey K.
van der Meer, Klaas
Meyboom-de Jong, Betty
Title Patient's need for choice and information across the interface between primary and secondary care: A survey
Journal name Patient Education And Counseling   Check publisher's open access policy
ISSN 0738-3991
Publication date 2010-04
Year available 2009
Sub-type Article (original research)
DOI 10.1016/j.pec.2009.07.032
Volume 79
Issue 1
Start page 100
End page 105
Total pages 6
Editor A. Finset
Place of publication Princeton, NY, U.S.A.
Publisher Elsevier
Collection year 2011
Language eng
Formatted abstract
Objective Hospitals in the Netherlands have recently made certain performance data public, allowing patients to choose the location of their care. The objective of this study is to assess (a) patient preferences and experiences concerning the transition between primary and secondary health care, (b) patients’ needs for choice and information and how these are influenced by personal and morbidity factors.

Methods Two different types of questionnaires were used. The first questionnaire concerns the importance that patients attach to the care provided. The second questionnaire concerns the actual experiences of the patient with the care provided.

For the selection of patients, we used the databases of the registration networks of the Departments of General Practice of the Universities of Groningen and Leiden. The questionnaires were returned by 513 patients (Importance 69%) and 1404 patients (Experience 65%).

Results Many patients prefer the GP advising them regarding which hospital or specialist they should be referred to: a quarter of the patients preferred that the GP decided for them. Patients with a curable condition and patients aged between 25 and 65, highly educated and with stable personal characteristics as measured by a purposive scale, more often wished to use information from internet or newspapers to make a decision.

The amount of information that was needed on illness or treatment varied greatly. Young people, older people, and those with less stable personal characteristics more often desired only practical information.

Conclusions In spite of making performance data of different health care institutions public, only a limited number of patients want to use this information on a limited number of health problems.

Practice implications Care providers should take differences into account concerning patients’ need for information on their illness.
© 2009 Elsevier Ireland Ltd. All rights reserved.
Keyword Patients' choice
Patients' perceptions
Interface between primary and secondary care
Market share
Hospital performance
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Published under "Patient Perception, Preference and Participation". Available online 26 August 2009.

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2011 Collection
School of Medicine Publications
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Created: Sun, 02 May 2010, 00:02:20 EST