Parental perception and satisfaction with gastrostomies in children

Ee, L. C,, Wilson, H. M., Murphy, A. J. and Davies, P. S. W. (2006). Parental perception and satisfaction with gastrostomies in children. In: Journal of Gastroenterology and Hepatology. Australian Gastroenterology Week 2006, Adelaide, Australia, (A350-A350). 14-21 October 2006. doi:10.1111/j.1440-1746.2006.04693.x

Author Ee, L. C,
Wilson, H. M.
Murphy, A. J.
Davies, P. S. W.
Title of paper Parental perception and satisfaction with gastrostomies in children
Conference name Australian Gastroenterology Week 2006
Conference location Adelaide, Australia
Conference dates 14-21 October 2006
Proceedings title Journal of Gastroenterology and Hepatology   Check publisher's open access policy
Place of Publication Carlton South, Vic., Australia
Publisher Blackwell Publishing Asia
Publication Year 2006
DOI 10.1111/j.1440-1746.2006.04693.x
ISSN 0815-9319
Volume 21
Issue supp. 4
Start page A350
End page A350
Total pages 1
Language eng
Formatted Abstract/Summary
Percutaneous endoscopic gastrostomies (PEGs) are frequently
placed in children with feeding difficulties or inadequate intake to improve their nutrition and overall health. While this procedure is often perceived by medical and allied health staff to improve quality of life and make caring for these children easier, the perception and satisfaction of parents and carers with this intervention is not well known.

All children referred to our service for PEG placement were recruited prospectively into this study. Consenting families completed questionnaires on the day of the procedure, 3 months and at least 6 months after initial PEG placement. All children in this study had their PEGs converted to a skin level device 3 months after initial placement.

30 families consented to participate of which 18 have completed all 3 questionnaires. 21 parents completed initial and 3 month follow up questionnaires. All parents felt that they were sufficiently informed about the procedure prior to insertion. Anticipated benefits of the PEG at the time of insertion included making feeding easier (16/30), safer (15/30) and less stressful (13/30). At 3 months, 16/21 parents felt the PEG made care of their children less stressful although 4 parents felt it was more stressful. All parents who found it stressful were having problems with their tubes;
the commonest being granulation tissue, pain, and leakage from around the site. Interestingly when these 4 parents were surveyed again at 6 months, 2 felt it reduced stress, 1 felt it had no effect and 1 is yet to reach 6 months follow up. At 3 months, 19/21 families were either happy or very happy with the gastrostomy while 2 families remained ambivalent. All families however would have it done again and 19/21 would recommend this procedure to other parents. At 6 months, although meal times remained stressful in 7 families, 16/18 parents felt the gastrostomy made care of their children less stressful while 2 said it had no effect.  Five parents reported ongoing tube problems but did not report this as causing more stress. All parents were happy or very happy with the tube, with some commenting hat they should have had it performed earlier.

Most parents of children who have had PEGs were very happy with it, felt it made caring for their children less stressful and would recommend its insertion to other parents. All parents surveyed regardless of how they felt said they would have it done again.
Subjects 1103 Clinical Sciences
Keyword Percutaneous endoscopic gastrostomies (PEGs)

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Created: Thu, 25 Feb 2010, 15:57:02 EST by Gerald Martin on behalf of Faculty Of Health Sciences