Psychometric properties of the quality of life questionnaire for children with CP

Waters, Elizabeth, Davis, Elise, Mackinnon, Andrew, Boyd, Roslyn, Graham, H. Kerr, Lo, Sing Kai, Wolfe, Rory, Stevenson, Richard, Bjornson, Kristie, Blair, Eve and et al. (2007) Psychometric properties of the quality of life questionnaire for children with CP. Developmental Medicine & Child Neurology, 49 1: 49-55. doi:10.1017/S0012162207000126


Author Waters, Elizabeth
Davis, Elise
Mackinnon, Andrew
Boyd, Roslyn
Graham, H. Kerr
Lo, Sing Kai
Wolfe, Rory
Stevenson, Richard
Bjornson, Kristie
Blair, Eve
et al.
Title Psychometric properties of the quality of life questionnaire for children with CP
Journal name Developmental Medicine & Child Neurology   Check publisher's open access policy
ISSN 0012-1622
1469-8749
Publication date 2007-01
Sub-type Article (original research)
DOI 10.1017/S0012162207000126
Volume 49
Issue 1
Start page 49
End page 55
Total pages 7
Place of publication London, United Kingdom
Publisher Mac Keith Press
Language eng
Subject 1114 Paediatrics and Reproductive Medicine
1109 Neurosciences
1103 Clinical Sciences
Formatted abstract
This paper describes the development and psychometric properties of a condition-specific quality of life instrument for children with cerebral palsy (CP QOL-Child). A sample of 205 primary caregivers of children with CP aged 4 to 12 years (mean 8y 5mo) and 53 children aged 9 to 12 years completed the CP QOL-Child. The children (112 males, 93 females) were sampled across Gross Motor Function Classification System (GMFCS) levels (Level I=18%, II=28%, III=14%, IV=11%, V=27%). Primary caregivers also completed other measures of child health (Child Health Questionnaire; CHQ), QOL (KIDSCREEN), and functioning (GMFCS). Internal consistency ranged from 0.74 to 0.92 for primary caregivers and from 0.80 to 0.90 for child self-report. For primary caregivers, 2-week test-retest reliability ranged from 0.76 to 0.89. The validity of the CP QOL is supported by the pattern of correlations between CP QOL-Child scales with the CHQ, KIDSCREEN, and GMFCS. Preliminary statistics suggest that the child self-report questionnaire has acceptable psychometric properties.

The questionnaire can be freely accessed at http://www.deakin.edu.au/hmnbs/chase/cerebralpalsy/cp_qol_home.php
Keyword Psychometric properties
Cerebral Palsy
Quality of life
Questionnaire
Children
Q-Index Code C1

Document type: Journal Article
Sub-type: Article (original research)
Collections: Excellence in Research Australia (ERA) - Collection
School of Medicine Publications
 
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Created: Fri, 08 Jan 2010, 11:29:20 EST by Elissa Saffery on behalf of Faculty Of Health Sciences