Quality of life in young people with cystic fibrosis: effects of hospitilzation, age and gender, and differences in parent/child perceptions

Hegarty, M., MacDonald, J. A., Watter, P. and Wilson, C. (2009) Quality of life in young people with cystic fibrosis: effects of hospitilzation, age and gender, and differences in parent/child perceptions. Child: Care, Health and Development, 35 4: 462-468. doi:10.1111/j.1365-2214.2008.00900.x


Author Hegarty, M.
MacDonald, J. A.
Watter, P.
Wilson, C.
Title Quality of life in young people with cystic fibrosis: effects of hospitilzation, age and gender, and differences in parent/child perceptions
Journal name Child: Care, Health and Development   Check publisher's open access policy
ISSN 0305-1862
1365-2214
Publication date 2009-07-01
Sub-type Article (original research)
DOI 10.1111/j.1365-2214.2008.00900.x
Volume 35
Issue 4
Start page 462
End page 468
Total pages 7
Editor L. Pennington
Place of publication Oxford, United Kingdom
Publisher Wiley-Blackwell
Collection year 2009
Language eng
Subject C1
920204 Evaluation of Health Outcomes
920115 Respiratory System and Diseases (incl. Asthma)
111403 Paediatrics
Formatted abstract
Background
The Cystic Fibrosis Questionnaire-Revised version (CFQ-R) was used to evaluate age/gender effects on quality of life (QOL) in Australian young people with cystic fibrosis (CF) who were inpatients/outpatients aged 6–18 years. Parent/child agreement was also examined.

Method
The CFQ-R was completed by 18 outpatients, and 15 inpatients at admission for an acute pulmonary exacerbation to a tertiary hospital, Brisbane, Australia, as well as by parents of those aged 6–13 years.

Results
Inpatients scored significantly lower than outpatients for the CFQ-R domains 'emotional state', 'social', 'body image' and 'respiratory symptoms'. Young people aged 6–13 years scored significantly better than those aged 14–18 years for 'emotional state', 'body image' and 'treatment burden'. Women perceived less 'treatment burden' than did men. Young people aged 6–13 years perceived less 'treatment burden' than did their parents. A significant interaction occurred between child/parent report and gender for 'emotional state' and 'eating disturbances'.

Conclusion
The CFQ-R found differences between inpatients and outpatients and between younger and older paediatric patients with CF, and between parent and child perceptions of QOL. 
Keyword Australian young people
cystic fibrosis
parent/child perceptions
quality of life
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: 2009 Higher Education Research Data Collection
School of Health and Rehabilitation Sciences Publications
 
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Created: Tue, 10 Mar 2009, 23:21:05 EST