Reluctance to care: A systematic review and development of a conceptual framework

Burridge, Letitia, Winch, Sarah and Clavarino, Alexandra (2007) Reluctance to care: A systematic review and development of a conceptual framework. Cancer Nursing, 30 2: E9-E19. doi:10.1097/01.NCC.0000265298.17394.e0


Author Burridge, Letitia
Winch, Sarah
Clavarino, Alexandra
Title Reluctance to care: A systematic review and development of a conceptual framework
Journal name Cancer Nursing   Check publisher's open access policy
ISSN 0162-220X
1538-9804
Publication date 2007-03
Sub-type Critical review of research, literature review, critical commentary
DOI 10.1097/01.NCC.0000265298.17394.e0
Volume 30
Issue 2
Start page E9
End page E19
Total pages 11
Place of publication Philadelphia, PA, United States
Publisher Lippincott Williams and Wilkins
Collection year 2008
Language eng
Subject C1
321299 Public Health and Health Services not elsewhere classified
730299 Public health not elsewhere classified
1117 Public Health and Health Services
111799 Public Health and Health Services not elsewhere classified
Abstract Primary lay carers are increasingly important in the care of patients with cancer, but their role can be complex and extended. Potential carers may feel anything from highly committed to not at all interested in caregiving, but powerful social norms pressure them to accept the role, and reluctance may be hidden to avoid censure. The purpose of this review was to gain insights into caregiving reluctance and its consequences. The findings were organized into 4 major dimensions: demographic, physical, psychological, and social. Three major outcomes were identified: deterioration in the carer-patient relationship, reduced quality of care, and institutionalization. Definitive answers to the review questions remain elusive. Choice seems to be a major indicator of caregiving reluctance, although reluctance may not remain static over the caregiving trajectory. Caregiving reluctance remains an underexplored topic, particularly in the context of cancer.
Keyword Australia
Caregivers - Psychology
Family Relations
Female
Home Nursing - Methods - Psychology
Humans
Male
Needs Assessment
Neoplasms - diagnosis; mortality; therapy
Nurse-Patient Relations
Palliative Care
Respite Care - standards and trends
Risk Factors
Socioeconomic Factors
Stress - Psychological
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Critical review of research, literature review, critical commentary
Collections: Excellence in Research Australia (ERA) - Collection
2008 Higher Education Research Data Collection
School of Public Health Publications
School of Medicine Publications
 
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Created: Fri, 28 Mar 2008, 16:39:24 EST